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Tricia Mullins raised Ā£2,395 from 80 supporters
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Closed 13/02/2022
IŹ¼ve raised Ā£2,395 to š§” Start a charity in Austinās name š§” To give Austin a send-off fit for a king and to treat his 5 year old brother to a trip away š§”š§”
- Newcastle Upon Tyne
- Funded on Sunday, 13th February 2022
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Story
About Austin š§”
Austin was born a very normal, smiley, happy baby.
As the months progressed Austinās mum noticed a delay in his development and that he was unable to meet the milestones expected of her baby, such as rolling over, sitting up, crawling, walking or talking. His little body was losing its strength and also stiffness had occurred in his arms and legs.
When Austin was a year old he saw a paediatrician who intially thought it was Cerebal Palsy but Austin continued to deteriorate, he couldnāt chew or swallow, started losing alot of weight, having seizures and his eyesight started to fade.
A year later after more tests Mriās and brain scans Austins diagnosis was finally confirmed, he had a very rare brain disorder that affects only 1 child in a million ā INFANTILE SANDHOFFS DISEASEā causing rapid development regression within the first 6 months of life.
Courtney was told there was no cure and that death occurs within the first 3 years of life .
Her beautiful baby boy was slowly dying infront of her eyes.
Austin is two and a half years old and has now recently been moved from hospital to a hospice for end of life care.. we didnt think he would still be here this week as its been touch and go every single night and even though there is no cure he is still clinging on but is slowly fading away in front of our eyes while all we can do is sit, watch and wait.
No mother should have to sit and watch helplessly as her baby dies in front of herā¦ she is only 22 years old but is one of the strongest women i know.
Austin also has a big brother Bentley who is only 5 years old who absolutley dotes on Austin.. he refuses to leave his baby brothers side and is staying with Austin at the hospice š
Please help me to dig deep to raise as much money as we can to help Austins mum with his funeral costs so she can give him a send off fit for a king. I would also love to raise enough money for Bentley so we can give him a suprise trip to Lapland to meet the real santa claus and put a smile back on his little face. No little boy should have to go through this š
we are turning facebook ORANGE for Austin to raise awarenees of this awful disease that not many of us have ever heard of .Austins grandad would like to raise as much as we possibly can so he can start a charity off in Austins name to help other families who are going through the same heartache š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”
Can i ask everyone who reads this to please put an orange heart / facebook frame on your social media facebook/ instagram and to share this to gain maximum funds for this beautiful family š§”š§”š§”š§”š§”š§”
2 days ago we celebrated Austins 3rd birthday early and xmas because he wont be here for either š
š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”
Updates
3
- 3 years ago
Tricia Mullins
3 years agoAlso from dusk tomorrow Sat 23rd Oct (when the sun goes down) The Millenium Bridge will be lit up ā ORANGEā in memory of Austin and to raise awareness of Sandhoof disease . š¼ Thank you so much Gateshead Council š š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”
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- 3 years ago
Tricia Mullins
3 years agoTomorrow Sat 23rd October we are doing a balloon release at Leazes Park in Newcastle to say goodbye to our beautiful Austin. Austinās mum Courtney invites everyone to join in to set off a balloon up to heaven with a little message for her beautiful little boy . Meeting at either St James Park at 2.30 and walking down with candles or meeting at Leazes Park ready for balloon release at 3.08 pm the time Austin was born .. Everyone welcome š§”š§”š§”š§”š§”
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- 3 years ago
Tricia Mullins
3 years agoAt 3.55pm yesterday (19th Oct) beautiful Austin gained his angel wings and floated up to heaven. Courtney and the family are Absolutley heartbroken. Please please share and help us raise as much as we can to raise awareness of this evil disease and help give little Austin the send off he deserves. Fly high sweet boy š§”š§”š§”š§”š§”š§” We are turning Facebook orange š§” for Austin Share and get this out there ā¦ no mother or family should have to go through this. š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”
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Tricia Mullins started crowdfunding
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Supporters
80
r. morton
Nov 13, 2021
you are doing a great job
Louise Webster
Oct 30, 2021
So so sorry Sending so much love too you all rip beautiful little angel š š
Ā£10.00
Keli-lea
Oct 29, 2021
This was from the full makeup fundraiser! Love you Austinš§”
Ā£60.00
Anonymous
Oct 27, 2021
You have such a special place in all our hearts Austin, fly high little man, lots of love š§”šš§”
Ā£600.00
Hana Mann
Oct 24, 2021
Ā£20.00
Sandra T
Oct 24, 2021
My heart goes out to you, such a brave little boy.
Ā£10.00
michelle and deryck stitt
Oct 23, 2021
Ā£10.00
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Tricia Mullins
Newcastle Upon Tyne
Infantile Sandoff Disease is a rare inherited disorder which starts around 3-6mths in an infant with a life expectancy of only 3 yrs. Development slows and muscles used for movement weaken, also seizures, vision and hearing loss, enlarged organs and bone abnormalities . š§”š§”š§”