Tyler is an amazing 7 year old boy from Bury Lancashire, who behind his beautiful smile is hiding the fact he’s been battling for his life for the last 5 years and still counting. Having being diagnosed with cancer, EBV proliferation’s disease not only once but twice and also a fungal infection in his lungs all led to Tyler needing a life saving bone marrow transplant just recently, all this in the space of 5 years and he still manages a smile.

Through out the whole of the 5 years we have felt completely helpless and broken hearted but Tyler had a dream of one day being able to go to DisneyWorld Florida with his sisters and have fun like any other normal little boy. We have been fundraising for him for the last 5 years doing fashion shows, tough mudders, family fun days etc basically anything we can do to make his dream finally come true. Due to his further diagnosis and now transplant it’s going to cost us a lot more to travel there now but we are still trying our hardest and we are determined to get him there!

This little boy deserves the world he’s so brave and inspirational it’s unbelievable I really don’t know where he gets the strength! Tyler has been given a provisional yes on his potential travel this summer so we don’t have long so please please support us anyway you can as literally every penny helps and share this page anywhere and everywhere. It really means the world to have people supporting Tyler and words will never be enough to express this. I’ve wrote a little more about what Tyler has been through in the last 5 years below. Thank you for taking the time to read this. 💖

Tyler was diagnosed with Leukaemia aged 2 and began his gruelling 3 years of chemotherapy, surgery and treatment. When Tyler was coming to the end of his 3 years of treatment he became poorly again and was then diagnosed with EBV proliferation’s disease which made him extremely poorly resulting in him being admitted into intensive care due to not being able to breathe on his own. Due to the disease not being diagnosed for a while it caused tissue to build up in his lungs, ears (before and after) his ear drums and also in all the space in and around his brain which also caused damage to his facial nerve resulting in half his face being paralysed unfortunately due to the severity of this Tyler’s face is still like this now. The hospital were hopeful that treatment and surgery for the EBV would help to correct this and make him feel better so the treatment began. But after all this Tyler still wasn’t really himself and was again diagnosed with EBV proliferation’s disease again which is very rare to get again (it was really rare to get it once) and also a fungal infection inside of his lungs. The treatment had only lasted 9 months before this happened again and it’s likely that it would work for a much shorter time.

The hospital then began testing Tyler further as they were concerned that there was an underlying condition causing Tyler to have 3 life threatening diseases in quick succession at such a young age. They then took his DNA bloods skin samples etc and sent them away to Paris for testing. The results came back quite quickly to indicate there was an immunodeficiency in Tyler which was quite rare and requested further samples to continue testing. What came back next was truly shocking and really rocked our entire world. Tyler had an immunodeficiency that no one in the whole world have ever had before him and the only treatment was a bone marrow transplant in order to try and save his life.

The hospital moved forward with planning the transplant as it was an urgent case but it was such a hard decision to come to as parents to put Tyler’s life at risk again at such a high intensity to try to fix the problem hopefully for life. So we sat down with Tyler’s transplant team and made the heart breaking decision to go ahead with the transplant.

This required Tyler to once again go through intensive chemotherapy to prep his body ready for the transplant. As non of Tyler’s sisters were a match for Tyler’s marrow we had to turn to a donor for the cells. He was in total isolation from the world for a long time even having to go over two weeks without seeing his two sisters who are his best friends - they have such an amazing bond. But completely heart breaking forcing the kids apart for so long because we had no choice. But slowly Tyler’s blood numbers increased and they were allowed to come to see him and finally after a long wait we were able to come home under isolation precautions. The transplant cells take a long number of months to graft and begin to work in Tyler resulting in a functioning immune system once this is done he will be allowed out of isolation and continue to allow the cells to do what they should be doing and killing off his own cells that are still around which should result in Tyler having a normal functioning immune system which can deal with all this problems in the right way.

So all we can do now is stay positive and hopefully soon the graft will fully be done and allow Tyler to have a fully functioning immune system. It’s so scary waiting for the blood results each time hoping for the best and not being able to do anything to help him other than be protective of him try to keep him from getting infections and illnesses whilst this all happens. In the meantime we are going to do all we can to get him and his beautiful sisters to Disney so they can have fun like normal children do and not worry about the next surgery, blood tests, results and scans.

Please keep Tyler in your thoughts and keep everything crossed for him that this will finally cure him forever 💖 xxx