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Vanessa Kelly raised £67,343.8 from 1357 supporters
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Closed 30/09/2022
Iʼve raised £67,343 to help pay towards life saving treatment in Germany for our daughter who has Been diagnosed with Glioblastoma Multiform.
- Leicestershire
- Funded on Friday, 30th September 2022
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Story
Our beautiful and happy 11year old daughter was diagnosed with a brain tumour on the 27th August 2021, following on from a referral from the opticians for swelling behind her eyes. She stayed in hospital for nearly 2 weeks and underwent an 8hr surgery to remove about 80% of the tumour. The biopsy went sent off and a week later we were given the devastating diagnosis that our amazing girl had stage 4 brain cancer Glioblastoma Multiform. We were utterly devastated and cried all the way home from the hospital, it broke our hearts when we had to break the news to her, she was so brave and vowed to beat this. Grace is our oldest child, she has 2 younger siblings who adore her, she is their big sister. As a family it has really hit us and has been hard to accept, its an emotional rollercoaster of fear, pain, hope and love for our daughter. She is our superhero, and amazes us at how well she is doing with her treatment so far.
Grace is currently undergoing standard of care at a midlands hospital, her chemoradiotherapy is tough but she rarely complains, the staff are great and we appreciate all they are doing. However, this treatment on its own is not enough, to beat this aggressive cancer we need to take a holistic approach. We are shocked that this standard of care has been the same for such an aggressive brain cancer for the last 20 years. There has been success with repurposed drugs etc but this is not an option within the NHS especially for children, even the private clinics will not take on paediatric patients so we are having to look further afield for treatment. We have found a clinic in Germany called IOZK who offer immunotherapy, a pioneer treatment in the fight of brain cancers, this is not covered by the NHS so we must fund it our self. The cost for the diagnostics is around £9,500 and treatments and personalised vaccines cost between £11,00 and £25,000, she would need at least 3 vaccines along with other treatments such as electro hyperthermia.
Please help us fund this extra treatment for our beautiful daughter, please hep us get her to Germany so she has the best chance of beating the odds. Every penny will help her get one step closer.
Thank you
Updates
8
- 2 years ago
Vanessa Kelly
2 years agoThank you so much for all your generous donations. It has been 6 weeks since our beautiful warrior Grace passed away, our hearts hurt so much, and we miss her loads. We will be making a donation to Brain Tumour Research to continue the fight, finding a cure for brain tumours. I will be closing this fundraiser on the 30th of September 2022. If you would still like to donate to a good cause, then please send it to Brain Tumour Research. Thank you so much on behalf of ourselves and our angel Grace xxx
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- 2 years ago
Vanessa Kelly
2 years agoThank you for the generous donations, the positive thoughts and prayers. It is with great sadness and heartache that i must tell you that our beautiful daughter Grace passed away on the 13th August. Our brave warrior fought amazingly well and always had a smile upon her face no matter what she faced. Our hearts are breaking at the loss of her, our kind funny girl deserved a full and healthy life, i still cant believe this cruel disease has took her from us. Thank you again everyone who donated and prayed for our daughter.
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- 3 years ago
Vanessa Kelly
3 years agoThank you everyone for your continued support. Grace is doing really well at the moment and is back to school a few times a week now which is great. Her recent scan has shown stability and shrinkage which is amazing. She has however got 3 tiny spots on her spine now, so something new to tackle but we taking on this challenge with vigor. Still awaiting the Germany trial as there is delays from the hospital but hope they will be resolved soon 🙂
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Supporters
1357
Yohan
Sep 27, 2022
For the Fight for a cure for Brain tumors
£2,000.00
Samantha
Sep 23, 2022
£10.00
Oadby Fish Bar
Sep 2, 2022
£122.00
Yohan
Sep 1, 2022
Sorry for the loss of a departed sweet angel
£2,000.00
Vanessa stanbridge
Aug 22, 2022
Take one day at a time, you learn to live with the loss of a child xxx
£30.00
The Students at Beauchamp College
Aug 16, 2022
£1,261.55
Anonymous
Aug 5, 2022
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