I am writing this story with a heavy heart,on behalf of a family who hold a special place in my life. Inaaya,a beautiful baby girl,was born the 6/11/16. In her short life she has brought love & joy to her family,but this threatens to be cut short as she faces a life threatening diagnosis.
On the 28th of Jan17 Inaaya took ill and after several tests & a 5 hour blood transfusion,her parents where given the news that their baby girl has Wolmans disease.
It is a rare condition found in babies which means they cannot produce an enzyme which breaks down nutrients which they need to grow & survive.children with this disease develop severe malnutrition & often dont live past early childhood.
I could sit and cry for Inaaya and her family,but I wont sit idle. This disease is ripping a family apart and has left us broken.I am hoping to raise enough money to help fund Inaaya’s treatment and help her get the medication she needs. The treatment is £500,000,I know that seems like an impossible sum but I must take a shot at this monster.
To ensure she gets the help she needs to have a long and loving life I need your help. I ask from the bottom of my heart,if its only £1, you will be making a impact on this family, giving them the support to be with their precious girl.They say you cant put a price on a life, but sadly in this case you can. This beautiful baby girl is at a crossroads, her mummy, daddy and big brother need her, they still have memories to make and so much love to give.At 3 mths old she is just starting to show her personality with a smile that could end wars, please help give this little girl the chance she & her family need.
When faced with adversity such as this we as human beings often cower & feel useless, but I will not & neither will this family, I have known them to be the strongest most will ever know, filled with bravery,strength & most of all love. Please, show love, show kindness,if it takes away a tiny amount of pain,it will be worth it.Thanku