Vicky Robayna is crowdfunding
Iʼm raising £100,000 to donate to Desmoplastic Small Round Cell Tumour Research
- North Yorkshire
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Story
In January 2024 our beautiful 17 year old daughter was diagnosed with Desmoplastic Small Round Cell Tumour - a rare and aggressive sarcoma that affects just 12 people in the UK per year.
It has a 5 year survival rate of just 15%.
Liz died on thed 27th November 2024, just 10 months after her diagnosis.
When Liz was diagnosed DSRCT has no dedicated organisation fighting for funding. There is still no recognised treatment protocol. Finding information when Liz was first diagnosed was like hunting for a needle in a haystack. We are in the process of trying to change this - and have begun the process of setting up ‘The Desmoplastic Small Round Cell Tumour Charity.’ We hope that this charity will help to change things, enabling families like ours to have access to kinder treatments and better outcomes, as well as support from those who understand when they need it the most.
The first piece of research we aim to fund will bring together the information from across the wlorld into one usable document for physicians. We will share that information in an accessiblde format for patients and parents. It’s an important first step in advancing knowledge. From there we will go on to fund future research and support.
Liz had the best medical team we could ever have hoped for, but to change the outcome more research is needed. We hope that funds raised will raise awareness and help fund research into discreet treatments for DSRCT in the UK.
15% is too small a number. Together we can change that. Liz’s bucket list had a village that came along to try to try to help her achieve it. Let’s make this the final item and do her proud.
(N.B. Added to the above target is an additionl £4,200 which has been donted to Liz’s own GoFundMe in the last 24 hours)
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Updates
2
1 month ago
Vicky Robayna
1 month ago12 of Liz’s best photographs are going up for auction. To secure a photograph you can either place a bid online from now, or go along to Morphet’s sale room on the 1.02.25. You can find the catalogue here - Liz’s photos start at Lot 235: https://rb.gy/k1wxwk We have less than £20,000 to raise to get to our £100,000. If you can help us in any way we would love to hear from you. Could you run a coffee morning for friends, have a bake sale in your workplace, do a sponsored event, or share Liz’s story with your friends?
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2 months ago
Vicky Robayna
2 months agoThis week we have been talking about our plans: https://www.facebook.com/bbcbreakfast/videos/raise-awareness-about-desmoplastic-small-round-cell-tumor-on-bbcbreakfast-we-spo/1129963252062686/ We now need to ask for help. We need to spread the word. Please share the page on your social media, or if you prefer share our posts on Facebook (Victoria Hatton), Instagram (@2ndTimeMama) or Instagram (@lizhatton_instagram) If you have ideas or contacts who can help us spread the word or can help with the charity or fundraising, please get in touch.
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Vicky Robayna started crowdfunding
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Supporters
3333
Cleo Jones
Feb 15, 2025
£5.00
Anonymous
Feb 14, 2025
Tracy
Feb 14, 2025
I believe in your cause, let's make a difference together!
£5.00
Faye
Feb 14, 2025
Together, we can make a difference. Let's support Vicky Robayna and her incredible cause.
£10.00
Maureen Johnson
Feb 12, 2025
£25.00
Caroline Liddle
Feb 12, 2025
£10.00
Emma M
Feb 10, 2025
Well done on the completing the January fitness challenge Carla!! Such an amazing cause xx
£20.00
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What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.
The page owner is responsible for the distribution of funds raised.
About the fundraiser
Vicky Robayna
North Yorkshire
Mum to Liz Hatton who died today from Desmoplastic Small Round Cell Tunour