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Victoria Dickson raised £8,319.18 from 268 supporters

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Closed 02/10/2018

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£8,319raised of £22,182 target by 268 supporters

    Weʼve raised £8,319 to Fund Nivolumab to treat Hodgkin Lymphoma

    Funded on Tuesday, 2nd October 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    As many of you already know I have been battling Hodgkin Lymphoma for almost a year now. I was first diagnosed in October 2016 when I was 20 weeks pregnant. Since then here's what's happened:

    * January 2017: Went in for chemo feeling rotten. Was told my left lung had collapsed. Informed baby would need to be delivered early so my chemo could be changed to something more aggressive. Lovely baby Ruth delivered the following week (7 weeks early). PET scan showed disease not improving. Chemo changed to Escalated BEACOPP.

    * February: Neutropenic sepsis. Two weeks in intensive care. Bleed on both eyes.

    * March 2017: Remission.

    * April/May: Lymphoma symptons returned slowly e.g night sweats, itching etc.

    * July/August: PET scan confirms it is back. ICE chemo delivered as an inpatient - unsuccessful.

    * September: Brentuximab started. I really believed this was going to do it!

    So, here we are. Last week (end of September) I met with my haematologist. I told her I believed the Brentuximab was not working. She ordered an urgent CT scan which indeed confirmed disease progression (I didn't want to be right but unfortunately I was!).

    So, on 9th October 2017 I will start GDP chemo. Fingers etc crossed!

    If this fails the plan is I would then enter a clinical research trial.

    If that doesn't work then Nivolumab could be an option but it would not be NHS funded for me as I have not had a failed stem cell transplant.

    My haematologist recomended to me to crowdfund to fund Nivolumab so here I am! She advised me to attempt to get funds in place before needing the drug so that should that day come there wouldn't be a delay due to money.

    If I don't use the funds they will be returned to the donors. Anywhere this is not possible, eg due to funds from an event then the money will go to Cancer Research.

    I desperately want to be around for my lovey Freddie and baby Ruth. I want to see them grow up.

    I never imagined being in this position.

    Thank you for reading and anything at al! you can give.

    Vicky

    Updates

    14

    • Victoria Dickson9 months ago
      Victoria Dickson

      Victoria Dickson

      9 months ago

      Hello everyone! So my PET scan from 15th March (My birthday!) shows the lymphoma has gone from my neck and is diminishing in other areas. I still have it but they said they are 'very excited' at the hospital and have said It's very positive. So plan now is more Nivolumab whilst they get my donor ready. I still have funds for 4 more rounds. Isn't it amazing what kindness can do?!

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    • Victoria Dickson1 year ago
      Victoria Dickson

      Victoria Dickson

      1 year ago

      Each day brings new elements to this journey! So, 3 different people have approached me and offered to pay for a round of treatment each!!!!!!! This now means I have enough for 8 lots of Nivolumab which is what my nurse recommended I aim for! Any other funds that come in i will hold onto incase needed for further treatment but basically I'm pretty covered now!!!!!! Always and forever grateful for the incredible kindness and love shown to me and my lovely wee family xx

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    • Victoria Dickson1 year ago
      Victoria Dickson

      Victoria Dickson

      1 year ago

      Starting Nivolumab on Mon 22nd January. Thanks to your kindness this is possible! Today I've been told each round will cost £2772.78. The hospital worked hard to get the drug cost down and to absorb associated costs, e.g. anti sickness, staff etc. I've been advised to try and have enough for 8 rounds so adjusted the total. There's almost £14k at the mo. I hope I won't need 8 rounds but best to have the option to keep the lymphoma away long enough to have my stem cell transplant. Please share my page and thank you from the bottom of my heart!

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    1 year ago

    Victoria Dickson started crowdfunding

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    Page last updated on: 8/12/2018 10:21 AM

    Supporters

    268

    • Helen Turnpenny

      Helen Turnpenny

      Aug 12, 2018

      Thank goodness you never needed my original promise Vicky, so here's a little treat xxx

      £100.00

    • Samantha Adams

      Samantha Adams

      Apr 22, 2018

      Get well soon Vicky from me and Maddie xxx

      £20.00

    • kerrie milford

      kerrie milford

      Mar 20, 2018

      £20.00

    • Vilma Jagutytė

      Vilma Jagutytė

      Mar 17, 2018

      I had to fight Hodgkin's Lymphoma too in my mid twenties. It was a tough fight. I am better now and recovering from a stem cell transplant. Just wanted to show you some support. xxx

      £10.00

    • Katie Foxall

      Katie Foxall

      Mar 17, 2018

      £20.00

    • Marie Gleed

      Marie Gleed

      Mar 17, 2018

      With love, from Bristol xxxxx

      £100.00

    • Ben Spiller

      Ben Spiller

      Mar 16, 2018

      Only just met you, but having been there , I’m happy to donate to help.Pass on the help to someone else one day . Blessings .

      £100.00

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    Victoria Dickson

    Victoria Dickson

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