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£8,319raised of £22,182 target by 268 supporters

Weʼre raising £22,182 to Fund Nivolumab to treat Hodgkin Lymphoma

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Story

As many of you already know I have been battling Hodgkin Lymphoma for almost a year now. I was first diagnosed in October 2016 when I was 20 weeks pregnant. Since then here's what's happened:

* January 2017: Went in for chemo feeling rotten. Was told my left lung had collapsed. Informed baby would need to be delivered early so my chemo could be changed to something more aggressive. Lovely baby Ruth delivered the following week (7 weeks early). PET scan showed disease not improving. Chemo changed to Escalated BEACOPP.

* February: Neutropenic sepsis. Two weeks in intensive care. Bleed on both eyes.

* March 2017: Remission.

* April/May: Lymphoma symptons returned slowly e.g night sweats, itching etc.

* July/August: PET scan confirms it is back. ICE chemo delivered as an inpatient - unsuccessful.

* September: Brentuximab started. I really believed this was going to do it!

So, here we are. Last week (end of September) I met with my haematologist. I told her I believed the Brentuximab was not working. She ordered an urgent CT scan which indeed confirmed disease progression (I didn't want to be right but unfortunately I was!).

So, on 9th October 2017 I will start GDP chemo. Fingers etc crossed!

If this fails the plan is I would then enter a clinical research trial.

If that doesn't work then Nivolumab could be an option but it would not be NHS funded for me as I have not had a failed stem cell transplant.

My haematologist recomended to me to crowdfund to fund Nivolumab so here I am! She advised me to attempt to get funds in place before needing the drug so that should that day come there wouldn't be a delay due to money.

If I don't use the funds they will be returned to the donors. Anywhere this is not possible, eg due to funds from an event then the money will go to Cancer Research.

I desperately want to be around for my lovey Freddie and baby Ruth. I want to see them grow up.

I never imagined being in this position.

Thank you for reading and anything at al! you can give.

Vicky

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Updates

14

  • Victoria Dickson5 months ago
    Victoria Dickson

    Victoria Dickson

    5 months ago

    Hello everyone! So my PET scan from 15th March (My birthday!) shows the lymphoma has gone from my neck and is diminishing in other areas. I still have it but they said they are 'very excited' at the hospital and have said It's very positive. So plan now is more Nivolumab whilst they get my donor ready. I still have funds for 4 more rounds. Isn't it amazing what kindness can do?!

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  • Victoria Dickson7 months ago
    Victoria Dickson

    Victoria Dickson

    7 months ago

    Each day brings new elements to this journey! So, 3 different people have approached me and offered to pay for a round of treatment each!!!!!!! This now means I have enough for 8 lots of Nivolumab which is what my nurse recommended I aim for! Any other funds that come in i will hold onto incase needed for further treatment but basically I'm pretty covered now!!!!!! Always and forever grateful for the incredible kindness and love shown to me and my lovely wee family xx

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  • Victoria Dickson7 months ago
    Victoria Dickson

    Victoria Dickson

    7 months ago

    Starting Nivolumab on Mon 22nd January. Thanks to your kindness this is possible! Today I've been told each round will cost £2772.78. The hospital worked hard to get the drug cost down and to absorb associated costs, e.g. anti sickness, staff etc. I've been advised to try and have enough for 8 rounds so adjusted the total. There's almost £14k at the mo. I hope I won't need 8 rounds but best to have the option to keep the lymphoma away long enough to have my stem cell transplant. Please share my page and thank you from the bottom of my heart!

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11 months ago

Victoria Dickson started crowdfunding

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Page last updated on: 8/12/2018 10:21 AM

Supporters

268

  • Helen Turnpenny

    Helen Turnpenny

    Aug 12, 2018

    Thank goodness you never needed my original promise Vicky, so here's a little treat xxx

    £100.00

  • Samantha Adams

    Samantha Adams

    Apr 22, 2018

    Get well soon Vicky from me and Maddie xxx

    £20.00

  • kerrie milford

    kerrie milford

    Mar 20, 2018

    £20.00

  • Vilma Jagutytė

    Vilma Jagutytė

    Mar 17, 2018

    I had to fight Hodgkin's Lymphoma too in my mid twenties. It was a tough fight. I am better now and recovering from a stem cell transplant. Just wanted to show you some support. xxx

    £10.00

  • Katie Foxall

    Katie Foxall

    Mar 17, 2018

    £20.00

  • Marie Gleed

    Marie Gleed

    Mar 17, 2018

    With love, from Bristol xxxxx

    £100.00

  • Ben Spiller

    Ben Spiller

    Mar 16, 2018

    Only just met you, but having been there , I’m happy to donate to help.Pass on the help to someone else one day . Blessings .

    £100.00

Victoria Dickson

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Victoria Dickson

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