49%
£51,092raised of £103,227 target by 1016 supporters

Weʼre raising £103,227 to fund additional drug Mifamurtide (Mepact) to help fight Osteosarcoma bone cancer

Location
Leeds, United Kingdom

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Story

I am a mum of two young children, Poppy (2) & Alfie (1). I was diagnosed with Osteosarcoma (OS), a type of bone cancer, on my rib, age 33 in Sept 17. It is a very aggressive rare cancer that often spreads to other parts of the body. It is believed the cancer cells have already spread in about 80% of patients at diagnosis but are so small they can’t be seen on scans. With a high recurrence rate, as time passes small cells that can’t be seen initially would eventually grow and be detected as a relapse.

So far:
- 10 weeks intensive chemo
- 22 Dec surgery to remove 3 ribs
- Just begun a further 18 weeks of chemo

In 30 years the only medical advance for OS is the development & approved licence of the drug Mepact for 2-30 year olds - a targeted cancer drug boosting the immune system to kill cancer cells & prevent recurrence. In the trial there was an improvement in the number of patients alive & well 6 years after treatment compared to those who didn’t have Mepact. As OS primarily occurs in children & young adults, the trial only included people between 2-30 years.

Approved by NICE in 2011, the NHS now offer Mepact as an additional drug to patients post-surgery within the trial age range. NICE recommended Mepact because more people are cured if they have Mepact as well as the standard chemo, with cost justified by benefits provided.

As I was age 33 at diagnosis, NHS have declined funding for this additional drug. The cost to self-fund is £103,227. My Oncologist believes I would benefit from this treatment. If I were age 30 at diagnosis it would have been offered on the NHS.

I have continued love & support from family & friends and remain positive. I aim to raise the funds required to be treated with this drug & improve my chances of survival and preventing relapse. With a young family, I hope for a long future to watch them grow. I would be forever grateful for help reaching this goal. Any contribution you can give or fundraise would be appreciated.

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Victoria Trusch

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    1 month ago

    Victoria Trusch started crowdfunding

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    Supporters

    1016

    • Anonymous

      Anonymous

      Feb 20, 2018

      £100.00

    • Katy Bradley

      Katy Bradley

      Feb 20, 2018

      £10.00

    • Lisa Campey

      Lisa Campey

      Feb 20, 2018

      Hiya Vicky. Just been speaking to my mum and dad and they would like to donate. Lots of love Lisa and Michelle xx

      £5.00

    • Anonymous

      Anonymous

      Feb 20, 2018

      £10.00

    • Caroline Hesketh’s friend - Jenny

      Caroline Hesketh’s friend - Jenny

      Feb 20, 2018

      £5.00

    • GRAHAM, AUDREY, RUTH & PETER

      GRAHAM, AUDREY, RUTH & PETER

      Feb 20, 2018

      HURDLES ARE FOR OVERCOMING. EVERYBODY IS WITH YOU.

      £10.00

    • Alistair Smith

      Alistair Smith

      Feb 19, 2018

      To Vicky, Simon and family. So sorry to hear of your news, we wish you all the best and hope you can stay strong. From Alistair and Emily (and £30 from my mum!) x

      £130.00

    About the fundraiser
    Victoria Trusch

    Victoria Trusch

    Leeds, United Kingdom

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