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Victoria Trusch raised £54,452.47 from 1095 supporters.

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Closed 05/03/2018

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£54,452raised of £103,227 target by 1095 supporters

    Weʼve raised £54,452 to fund additional drug Mifamurtide (Mepact) to help fight Osteosarcoma bone cancer

    Location
    Leeds, United Kingdom
    Time left
    Funded on Monday, 5th March 2018

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    Story

    I am a mum of two young children, Poppy (2) & Alfie (1). I was diagnosed with Osteosarcoma (OS), a type of bone cancer, on my rib, age 33 in Sept 17. It is a very aggressive rare cancer that often spreads to other parts of the body. It is believed the cancer cells have already spread in about 80% of patients at diagnosis but are so small they can’t be seen on scans. With a high recurrence rate, as time passes small cells that can’t be seen initially would eventually grow and be detected as a relapse.

    So far:
    - 10 weeks intensive chemo
    - 22 Dec surgery to remove 3 ribs
    - Just begun a further 18 weeks of chemo

    In 30 years the only medical advance for OS is the development & approved licence of the drug Mepact for 2-30 year olds - a targeted cancer drug boosting the immune system to kill cancer cells & prevent recurrence. In the trial there was an improvement in the number of patients alive & well 6 years after treatment compared to those who didn’t have Mepact. As OS primarily occurs in children & young adults, the trial only included people between 2-30 years.

    Approved by NICE in 2011, the NHS now offer Mepact as an additional drug to patients post-surgery within the trial age range. NICE recommended Mepact because more people are cured if they have Mepact as well as the standard chemo, with cost justified by benefits provided.

    As I was age 33 at diagnosis, NHS have declined funding for this additional drug. The cost to self-fund is £103,227. My Oncologist believes I would benefit from this treatment. If I were age 30 at diagnosis it would have been offered on the NHS.

    I have continued love & support from family & friends and remain positive. I aim to raise the funds required to be treated with this drug & improve my chances of survival and preventing relapse. With a young family, I hope for a long future to watch them grow. I would be forever grateful for help reaching this goal. Any contribution you can give or fundraise would be appreciated.

    Updates

    1

    • Victoria Trusch3 months ago
      Victoria Trusch

      Victoria Trusch

      3 months ago

      I would like to thank everyone for their amazing love, support and generosity. I am extremely grateful. I never dreamed I could raise this much money from friends, family and total strangers. With more than 50% of the funds raised here and further private contributions, I believe I have now reached my goal. Treatment started a few weeks ago and is intense alongside my other chemo but I hope for a positive outcome as it continues throughout the remainder of the year. Once again thanks for all the love and support, it is invaluable xx

      Share this update to help us raise more

    4 months ago

    Victoria Trusch started crowdfunding

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    Page last updated on: 3/5/2018 6:32 PM

    Supporters

    1095

    • Anonymous

      Anonymous

      Mar 5, 2018

      £20.00

    • Hannah Pring

      Hannah Pring

      Mar 5, 2018

      £10.00

    • Nicola Wilkes

      Nicola Wilkes

      Mar 5, 2018

      £10.00

    • Melanie Rutter

      Melanie Rutter

      Mar 5, 2018

      Sending love and support to you and your family, keep strong, you got this!!

      £20.00

    • Tracey McNab

      Tracey McNab

      Mar 5, 2018

      £10.00

    • Alison Harney

      Alison Harney

      Mar 5, 2018

    • M BOUCHER

      M BOUCHER

      Mar 5, 2018

      Good Luck, Victoria

      £10.00

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    About Crowdfunding
    About the fundraiser
    Victoria Trusch

    Victoria Trusch

    Leeds, United Kingdom

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