My little girl is almost 9 years old. She has many problems. From Epilepsy, being tube fed, cortical blindness, she can't walk, can't talk. She has quad cp. When we thought that our hearts couldn't hurt anymore from loosing our first daughter at 36 weeks of pregnancy... life continues to turn things upside down. We now have to live our life knowing our little girl will die from this life limited condition. We are in the process of trying to get Alicia a sensory room. She deserves this and so much more. Our wish is to build as many memories as possible with her.
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