Why I care ?

Myself Andy Davies (Dj name AnDD) was initially introduced to this cause via a few friends for life in the music industry, the wonderful Lee and Olivia Crank. I was approached to play Vision, which was a huge charity stream for the same cause, with a stellar line up, all live from the incredible venue, Bowlers Exhibition Centre Manchester. Although we did well regarding the donations from the event, Vision2 was always planned, to raise additional critical funds for these incredibly brave children. As you can see from the cover pic, I am a strong supporter of this amazing family and will continue to support and raise funds in the ways I know how.

What I am doing ?

Thanks for your support so far , hope you enjoyed Vision2 , we want to support this amazing charity even more so teaming up with my clothes sponsor we created some custom Off Ya Boxes - Ollies Army T- shirts that are available to buy now , please continue to support

Adults T-shirts - £17.99

Kids Sizes to order

Email - enquiries@greene-palm.com

stating Name , address , quantity and sizes you need

Why i am doing this and more importantly why we need your generosity ?

This is the journey of our beautiful little boy who is fighting a very rare genetic disease.

On Friday the 13th of February 2015 we were given the devastating news that our gorgeous boy had Battens disease. I remember sitting listening to the doctor telling us that our baby boy would loose his ability to walk, play, talk, swallow.

Ollie's epilepsy will become out of control, he will have hallucinations and memory loss, he will slowly lose the ability to see, and then those words that a parent never wants to hear....there is NO cure!

Children on average pass away between 6 and 12 years. Ollie is 4!

I remember looking passed the doctor at the clock on the wall watching the second hand ticking round and thinking this can not be happening they must have got it wrong, Ollie is a normal happy little boy with a normal family.

In September 2014 Ollie had his first seizure associated with a temperature. To that date it was the scariest thing we have ever had to see Ollie's whole body was shaking his eyes rolling, and then it stopped and so did his breathing. Ollie's daddy had to give Ollie mouth to mouth to get him to breathe again.

Over the next few months Ollie had more and more seizures, he was diagnosed with generalised epilepsy in October 2014. Ollie was started on medication. The doctors decided to play it safe and to run more tests.

Clues in Ollie's MRI, EEG and Ollie's speech delay made the doctors become more concerned that Ollie could have something more serious than epilepsy.

Over the next few weeks we had an awful wait for the blood results knowing in your gut that something just wasn't right but nothing could prepare us for the news we were going to receive.

Since receiving Ollie's diagnoses as parents we have felt every emotion.

Ollie however has taken everything in his stride, he loves playing with his brothers and sister, riding his bike and generally loves life. Our children have accepted that weekly hospital trips are normal and that the time we spend together is special.

Our promise to Ollie is to make his life a happy one that is full of love. We want to create awareness of this awful disease.

The money we raise will go towards any care and specialist equipment, any trials that may benefit Ollie, enjoyable experiences for the family and raising funds for the BDFA charity in the hope that one day a cure will be found.

As a family we would like to thank everyone for their continued love and support. Thank you to everyone who 'likes' this page, takes the time to read the updates and to those who send prayers.

Updated 17.06.2015

While processing this information, our family was hit with more devastating news. Our beautiful Amelia aged 2, also has Battens Disease. She will watch her brother suffer & know she will have the same fate. As a parent the pain is unbearable. I always dreamed of having a daughter.. doing our hair, makeup & nails together, seeing her in her wedding dress & having children of her own. Now Battens Disease has taken this away from us. Instead we will have to watch our little girl suffer.. without being able to see us, without being able to chase after her brothers, without being able to laugh, without being able to enjoy a special cake on her birthday, without being able to say those 3 words that melts every parents heart...

Now we have the dreaded wait for their older brothers results. Aged 7 & 8, we pray our 'big' boys won't suffer the same fate. I don't think its even possible to process that possibility. We are on our 8th week of waiting for the results..

Our children don't deserve this. No child deserves this.