Valentina’s story is both heart-wrenching and inspiring, reflecting the incredible resilience of her and her family. Living with such a rare disease as congenital hypomyelinating polyneuropathy type 3 presents enormous challenges, not only due to her medical condition but also because of the lack of available treatments. The initiative El Camino de Valentina is a powerful testament to the efforts being made to bring hope to her and others affected by ultra-rare diseases.

The ongoing research at Pablo de Olavide University, led by Dr. José Antonio Sánchez Alcázar, is a critical step toward finding a potential treatment or cure. As the cost of this research is significant (€50,000 annually), spreading awareness about Valentina’s story and this initiative is vital to ensure funding continues.

Supporting Valentina can make a meaningful difference in her life and for families facing similar challenges. By following @elcaminodevalentina29 on Instagram or contributing to the association, individuals can help sustain the research and provide hope for a brighter future for Valentina and others with this rare condition. Sharing her story can also amplify her voice and bring greater attention to the need for advancements in rare disease research.