Weʼre raising £6,000 to Undergo a bespoke intensive 2 week neurorehabilitation course at Cosmosuit in Italy, focused on improving Amell's chance of walking unaided.
- London, UK
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Our son Amell is an amazing 6 year old boy living with right sided hemiplegic Cerebral Palsy, caused by 2 separate injuries in his brain. With bravery, resilience, and a smile on his face, Amell embraces the challenges of his CP. He is unable to stand or walk unaided, and has limited use of his right limbs.
Unfortunately, the NHS is unable to do anything more for Amell until his early teens. This is because the only next step they can offer to help him walk is an extensive bone, muscle and tendon operation which will be ineffective until he is much older. Until this time Amell must persevere with his physio and occupational therapy, and wear his leg and hand splints. However this surgery can only fix the physical damage done to the body as a result of his CP, it does not counteract all of the incorrect signals Amell’s brain is sending to the body – which is the actual cause of the damage.
As Amell’s parents we refuse to wait around knowing that a lack of any intervention until his teenage years could make his muscles tighter, further reducing his chance of ever walking independently. As such we have found an intensive neurorehabilitation centre in Italy called Cosmosuit which offers rehabilitation for children with brain injuries such as Amell’s.
At Cosmosuit the patient receives up to 5 hours of rehabilitation per day, 6 days a week for 2-4 weeks, under a multidisciplinary team of 5-9 specialists, headed by a neurologist. Several physiotherapists carry out physical rehabilitation of one child. The therapy is aimed at training the brain to learn the correct signals to send to the body with the goal of developing gross and fine motor skills and coordination. Treatment comprises of complex therapies such as electrostimulation, hydrotherapy, medical gymnastics, neuromotor development, and medical massage. Please visit Cosmosuit for further information.
We believe this therapy will make an immeasurable difference to Amell’s quality of life until he is of age to undergo his surgery. Cosmosuit will actively work to "reorganize" the existing patterns of movement and launch the right activities in Amell’s brain. They will then work on formation of his posture and movement patterns in his brain. We believe this will result in Amell being able to stand independently for a long period of time, which will lead to the taking of unaided steps.
We kindly ask if you would help us in raising £6000 to cover the cost of this therapy for 2 weeks, and support us in helping Amell to have the best chance at walking unaided.
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- 2 months ago
A D Burton2 months ago
This year we are leaving it up to you to suggest any fund raising ideas you would want to see us do. All suggestions welcome!
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A D Burton started crowdfunding
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Aug 7, 2018
I wish Amell all the best x
Jul 21, 2018
Jul 21, 2018
You are an inspiration to us all Amell. You make me and everyone at Jigsaw SO proud! You will walk unaided and the time is getting closer and closer!! Your spirit and energy is always incredible! Xxxx
Jul 19, 2018
I send you all the health and luck in the world. You strong little man. Your going Italy and coming back to England walking independently. ❤️❤️
Jul 15, 2018
Good luck greg with your walk over the O2. What an incredible thing your doing for your amazing cousin. Hope you raise everything and more for your cousin 💜💜
Jul 14, 2018
Cannot wait to see you walk unaided Amell! You are very brave and we are all so proud of you! Lots of love, Auntie Meena xxx
Mr & Mrs Lock (& Finley)
Jul 6, 2018
You are an inspiration young man keep it up!!
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About the fundraiser
A D Burton
Walk For Amell started in 2014 whereby sponsors participate in a walk or other sponsored events on behalf of Amell. In previous years Walk For Amell has been very successful, raising funds for equipment and therapy to help Amell walk!
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