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Julie Barker raised £285 from 12 supporters
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Closed 17/05/2022
Iʼve raised £285 to help with ongoing costs of workshop materials, printing, volunteer expences, arts supplies whilst raising awareness.
- Long Eaton, Derbyshire
- Funded on Tuesday, 17th May 2022
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Story
Fibro Active is a support group for people with Fibromyagia and Chronic Fatigue Syndrome/ME and their carers. We have brought members out of isolation and created a wonderful supportive community. We run a bespoke programme that encourages members to keep moving, manage their symptoms and gain valuable emotional support.
Each year we hold our Walking to Awareness Campaign for 6 weeks leading up to International Awareness Day on May 12th. This is also Florence Nightingales birthday. Florence contracted Crimean Fever while she was out in Crimea nursing the soldiers during the war. Sadly, she never fully recovered and she spent her time from the age of 50 to when she passed away at 90 years old mainly confined to her bed with what we can assume from her diaries that she had fibro/CFS.
Walking is very difficult for mainy sufferers as they battle wide spread roaming pain and chronic fatue. Furthermore our muscles become stiff and weak. Sleeplessness exaserbates the symptoms and Fibro Fog and IBS can become worse. We are on a cycle of stress - pain - fatigue. There is no cause or cure, we can only manage our symptoms by staying within our daily limitations, pacing and keeping our muscles healthy with regualr mind body classes such as tai chi, qigong or yoga and some people benefit from accupuncture.
So we are asking sufferers to upload their weekly steps to our facebook page and anyone else who wishes to join in. We have 6 weeks to reach our target of 2362 miles and for the 2nd year we are opening the event up as a sponsored event. Please sponsor our members to reach our target and join in yourself and ask others to sponsor you too. Thank you)).
Updates
3
- 2 years ago
Julie Barker
2 years agoA BIG THANK YOU to everyone who posted their miles for week 5. The total walked for week 5 was 737.19 miles. Total so far 2536.65 miles. Next weeks miles will be setting next years target. Well done everyone!!! Please please please support our members on there last week. Thank you)))
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- 2 years ago
Julie Barker
2 years agoA big thank you to everyone who has supported us so far. Our members have been walking hard and are on target to meet our goal. Please help them along for the final 10 days of the Walking to Awareness Campaign. Thank you)))
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- 2 years ago
Julie Barker
2 years agoThank you so much to everyone who is supporting us))) We are half way and over half way walked. This week we collectively walked 558.72 miles so the distance walked so far is: 1278.31 miles. Only 1083.42 to reach our target. Our members have a daily battle just to function, so please show your support and appreciation and sponsor them to reach their target and give them a sense of achievement.
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Julie Barker started crowdfunding
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Supporters
12
Supporter
May 10, 2022
Keep up the great work, all of you.
Gareth, Nina & Julius
May 10, 2022
Well done Séan and everyone on successfully meeting your target.
£20.00
Jean Gretton
May 5, 2022
Well done Alison
£20.00
Anonymous
May 1, 2022
Dave Fisher
Apr 29, 2022
Good luck everyone.
£50.00
Mave The Rave
Apr 25, 2022
Good luck Séan and everyone. Mum
£50.00
Anonymous
Apr 15, 2022
£20.00
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Julie Barker
Long Eaton, Derbyshire
My name is Julie and I am the founder and Chairperson of Fibro Active. I started the group 6 years ago after the only other person I knew who had Fibromyalgia, my Dad, passed away. If 1 in 20 of us have got it, where was everyone? Our group has brought many of us together.