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£1,739raised of £10,000 target by 77 supporters

Weʼre raising £10,000 to to help pay towards a bucket list for my nephew who has muscular dystrophy

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Story

Myself and my good friend Gideon are looking to raise money for my nephew Rhys Jones to fulfill his bucket list of things he wants to do. Let me tell you a little about Rhys. Rhys is a 12 year old boy but unlike most he has muscular dystrophy. There are 7 types of muscular dystrophy and the one that Rhys has is duchenne which in terms of life expetancy is late 20's early 30's.

Muscular dystrophies are a group of inherited genetic conditions that gradually cause the muscles to weaken, leading to an increasing level of disability.

MD is a progressive condition, which means it gets worse over time. It often begins by affecting a particular group of muscles, before affecting the muscles more widely.

Some types of MD eventually affect the heart or the muscles used for breathing, at which point the condition becomes life-threatening.

There's no cure for MD, but treatment can help to manage many of the symptoms.

How we want to raise this money is to hire a kayak and take on the whole length of the river severn from source to mouth. That is massive 220 miles, we are hoping to do this in 8 days. We will walk from the source to llani and then cycle to Newtown as the river will be low that time of year which could cause damage to the kayak. We will be staying at B&B's along the route and will have my step dad who is a fireman meeting us at checkpoints for health and safety reasons.

One of the things Rhys would love to do is swim with dolphins, watch his beloved Liverpool play and loads of other things.

Any donation will be massively appreciated by myself and Gideon to making Rhys's dreams come true.

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Warren Sherwood

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    6 months ago

    Warren Sherwood started crowdfunding

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    Page last updated on: 8/13/2018 8:04 PM

    Supporters

    77

    • Michael Herbert

      Michael Herbert

      Aug 13, 2018

      Well done...good luck!

      £20.00

    • Sian Hopwood

      Sian Hopwood

      Aug 10, 2018

      Well done you two lovely people xx

      £20.00

    • Rhys Thomas

      Rhys Thomas

      Aug 10, 2018

      👍 Liverpool fan and he’s got a class name 👌

    • Anna berends

      Anna berends

      Aug 10, 2018

      £10.00

    • Kylie Phillips

      Kylie Phillips

      Aug 10, 2018

      Well done and good luck 😊

      £10.00

    • Karen Hunt

      Karen Hunt

      Aug 4, 2018

      After losing someone myself with MD I know what it’s like .. go make your dreams come true young man :)

      £10.00

    • Andrew Davies

      Andrew Davies

      Aug 3, 2018

      £10.00

    Warren Sherwood

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    Warren Sherwood

    Warren Sherwood

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