Weʼre raising £10,000 to to help pay towards a bucket list for my nephew who has muscular dystrophy
- 8 days to go
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Myself and my good friend Gideon are looking to raise money for my nephew Rhys Jones to fulfill his bucket list of things he wants to do. Let me tell you a little about Rhys. Rhys is a 12 year old boy but unlike most he has muscular dystrophy. There are 7 types of muscular dystrophy and the one that Rhys has is duchenne which in terms of life expetancy is late 20's early 30's.
Muscular dystrophies are a group of inherited genetic conditions that gradually cause the muscles to weaken, leading to an increasing level of disability.
MD is a progressive condition, which means it gets worse over time. It often begins by affecting a particular group of muscles, before affecting the muscles more widely.
Some types of MD eventually affect the heart or the muscles used for breathing, at which point the condition becomes life-threatening.
There's no cure for MD, but treatment can help to manage many of the symptoms.
How we want to raise this money is to hire a kayak and take on the whole length of the river severn from source to mouth. That is massive 220 miles, we are hoping to do this in 8 days. We will walk from the source to llani and then cycle to Newtown as the river will be low that time of year which could cause damage to the kayak. We will be staying at B&B's along the route and will have my step dad who is a fireman meeting us at checkpoints for health and safety reasons.
One of the things Rhys would love to do is swim with dolphins, watch his beloved Liverpool play and loads of other things.
Any donation will be massively appreciated by myself and Gideon to making Rhys's dreams come true.
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Sue mel ward
Apr 22, 2019
Good luck guys. Wish I could afford more to help. Such a brave lad xx
The Bent Family
Apr 21, 2019
Good luck Warren and Gideon. We wish you all the best
Apr 13, 2019
Well done John
Sarah and Paul
Apr 10, 2019
Well done John Davies for finishing the marathon and sponsoring this boys’ dreams! Legend
Apr 8, 2019
Congrats on completing the marathon John!
Apr 8, 2019
From Chris Dennant in support of John Davies' marathon fundraising
Apr 8, 2019
Well done on completing John.
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