Weʼre raising £10,000 to to help pay towards a bucket list for my nephew who has muscular dystrophy
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The page owner is responsible for the distribution of funds raised.
Myself and my good friend Gideon are looking to raise money for my nephew Rhys Jones to fulfill his bucket list of things he wants to do. Let me tell you a little about Rhys. Rhys is a 12 year old boy but unlike most he has muscular dystrophy. There are 7 types of muscular dystrophy and the one that Rhys has is duchenne which in terms of life expetancy is late 20's early 30's.
Muscular dystrophies are a group of inherited genetic conditions that gradually cause the muscles to weaken, leading to an increasing level of disability.
MD is a progressive condition, which means it gets worse over time. It often begins by affecting a particular group of muscles, before affecting the muscles more widely.
Some types of MD eventually affect the heart or the muscles used for breathing, at which point the condition becomes life-threatening.
There's no cure for MD, but treatment can help to manage many of the symptoms.
How we want to raise this money is to hire a kayak and take on the whole length of the river severn from source to mouth. That is massive 220 miles, we are hoping to do this in 8 days. We will walk from the source to llani and then cycle to Newtown as the river will be low that time of year which could cause damage to the kayak. We will be staying at B&B's along the route and will have my step dad who is a fireman meeting us at checkpoints for health and safety reasons.
One of the things Rhys would love to do is swim with dolphins, watch his beloved Liverpool play and loads of other things.
Any donation will be massively appreciated by myself and Gideon to making Rhys's dreams come true.
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Nov 17, 2018
Best of luck to both of you. xx
Oct 18, 2018
All the best lads x
Oct 5, 2018
Good luck with this fundraiser for Rhys!
Oct 4, 2018
Sep 22, 2018
Lovely young man xx
Sep 21, 2018
Just saw your Liverpool FC post, fair play to you for getting that organised for him, hope this helps
Marian and Gordon Pugh
Sep 20, 2018
Good luck to you all! Doing a sterling job xx
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