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May Williams raised £12,767.85 from 332 supporters.

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Closed 22/05/2017

100%
£12,767raised of £12,767 target by 332 supporters

    Weʼve raised £12,767 to help our beautiful daughter Molly have a Permobil K450 powerchair xxx

    Location
    Penistone, United Kingdom
    Time left
    Funded on Monday, 22nd May 2017

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    Story

    Our family are fundraising for our daughter, Molly Williams, aged 4.

    We are hoping you can help support us.

    In 2014, when Molly was 16mths old, she was diagnosed with the degenerative, genetic condition Spinal Muscular Atrophy (SMA). There is no cure. Because of her poor movement in pregnancy, the weakness of her lungs, and the fact that she could never even sit, she is a Type 1.

    95% of children with Type 1 SMA do not survive to their 2nd birthday.

    We can't really out into words the devastation, and horror, of being told this. It was like the end of the world. We were referred to Bluebell Wood Children's Hospice & started thinking about Molly's funeral.

    SMA is a muscle-wasting condition. It is a type of Muscular Dystrophy. The easiest way we can describe it to people, is that it is similar to what Stephen Hawking suffers with.

    Molly's SMA means that she will never walk, stand, or even sit unaided. She can't lift her arms above elbow height. Her hips have subjuxation (dislocation) and her spine has scoliosis, bending in on itself, all because of weak muscles. She wears a neck collar most of the time, and at night, she wears a bipap machine with a face mask, to blow air into her weak lungs.

    Incredibly, Molly is defying all the odds. She is an inspiration to us. Every time there have been emergency admissions to Sheffield Children's Hospital, Molly pulls through.

    Molly needs a Permobil K450 powerchair. It's more supportive, & more comfy, for Molly's body than a basic NHS chair. It has much better suspension. The main reason we feel Molly needs the Permobil, is because the seat raises up to a standing height, & it also lowers down to the floor. This would let Molly join in school story time, carpet time, & get to the primary school tables! Simple things other children have so easily.

    Molly is a lovely little girl. Always smiling, laughing, wanting to play. We love her so much.

    We want to support her and give her independence xx

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    May Williams

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      8 months ago

      May Williams started crowdfunding

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      Supporters

      332

      • Molly's Mummy and Daddy xxx

        Molly's Mummy and Daddy xxx

        May 21, 2017

        We did it! THANK YOU THANK YOU THANK YOU to everyone who has supported us, we do not have the words to say how grateful we are xxxxxxxxxxxxxxxxxxx

      • M Pickles

        M Pickles

        May 21, 2017

        We held a curry and quiz night at home on Friday with some of our family members and friends from work. We had such a laugh and managed to raise a few pounds!

        £235.82

      • Lewis Hardy

        Lewis Hardy

        May 20, 2017

        Don't know you folks but if everyone chipped in a little to help, you'd be at target. Best of luck to you and your family

        £2.50

      • Richard Spooner and Amie

        Richard Spooner and Amie

        May 20, 2017

        A great cause x

        £20.00

      • Lyndsay Temple

        Lyndsay Temple

        May 19, 2017

        Hope tonight went well, sorry I couldn't make it xx

        £20.00

      • Mark Hartree

        Mark Hartree

        May 19, 2017

        We can't make it down for your event so this is the equivalent amount of cakes and stuff we would have bought. Love the Hartree's

        £50.00

      • Amelia Maiden

        Amelia Maiden

        May 19, 2017

        £10.00

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      About Crowdfunding
      About the fundraiser
      May Williams

      May Williams

      [object Object]

      Penistone, United Kingdom

      NHS Midwife at the Jessop Wing ...... a career I love and have always loved <3 xxx

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