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John Rainsbury

John Rainsbury is crowdfunding

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£22,500raised of £100,000 target by 454 supporters

Weʼre raising £100,000 to fight childhood brain tumours in memory of our wonderful son, Will.

Bristol

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Our beautiful little boy Will was an adventurous and cheeky 6 year old, full of beans and with a real love for life. Sadly, we recently lost him following a 9 month battle with a particularly aggressive type of Medulloblastoma, a childhood Brain Tumour.

Medulloblastoma is the most common high grade childhood tumour, accounting for 15-20% of all childhood brain tumours. Whilst being caught early, Will's tumour was identified as having high risk and fast growing genetics (Group 3) and had already spread through his cerebrospinal fluid coating parts of both the brain and spinal cord.

Will's surgery was a great success, he fully physically recovered (playing football on the wards!) and had access to the established 'Gold Standard' Radiotherapy and Chemotherapy treatment. Despite all of this, Will relapsed during the end of his treatment and quickly succumbed to its aggressive progression within a month of the relapse.

With hindsight and in light of very recent advances in genetic understanding, it is clear the 'Gold Standard' treatment was unlikely to be successful in curing a Group 3 variety that had already spread. The 'Gold Standard' is an under researched, 30 year protocol that has not developed significantly over that time. New advances in genetics are confirming its ineffectiveness in fighting the most aggressive and devastating types of Medulloblastoma such as WIll's.

We are raising money to:

- Fund research into more effective primary treatments for the most aggressive varieties

- Support other families fighting this savage disease

- Push for change in primary cancer care methods, targeting specific genetic varieties and refocus towards bespoke treatment and innovation rather than protocol and dogma.

We fought really hard to save Will and whilst we lost him, perhaps we can be a force for good and help other families to save their children.

Follow us at https://www.facebook.com/Littlehero.org.uk/

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Updates

3

  • John Rainsbury2 months ago
    John Rainsbury

    John Rainsbury

    2 months ago

    Hi, Great news, now that Little Hero is a registered charity we can now claim gift aid from HMRC on donations. Would you please complete a gift aid declaration using the attached link and this will add an additional 25% in tax relief to the donations you have already made! https://www.surveymonkey.co.uk/r/YT8JSLW

    Share this update to help us raise more

  • John Rainsbury9 months ago
    John Rainsbury

    John Rainsbury

    9 months ago

    Thank you to all who have been kind enough to donate so far. We have been inspired by your response and have lots of events planned: Bristol 10k- 5th May Three Peaks- 1st June 5k mid race Downs- 29th June Break the cycle Bristol- 30th June Bristol Tough Mudder- 5th July Bristol-Paris cycle- 8th-12th Aug Cirencester Tough Mudder- 18th Aug Medoc Marathon- 7th Sept Bristol half marathon- 15th Sept Sodbury Slog- 10th Nov Birthday Auction- Nov tbc Please reach out if you would like to join us at an events or continue to directly donate.

    Share this update to help us raise more

  • John Rainsbury9 months ago
    John Rainsbury

    John Rainsbury

    9 months ago
    Update from the Page owner

    Share this update to help us raise more

10 months ago

John Rainsbury started crowdfunding

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Page last updated on: 12/2/2019 21.05

Supporters

454

  • Katherine Russell

    Katherine Russell

    Dec 2, 2019

    My daughter had a tumour, it was benign she/we are lucky. 10 days of hospitals and surgery I had just a glimpse of what you’ve been through and it was unbearable. Good luck with your fundraising. X

    £30.00

  • Anonymous

    Anonymous

    Nov 24, 2019

    £30.00

  • Anonymous

    Anonymous

    Nov 11, 2019

    Life is a gift.

  • Alex Harper

    Alex Harper

    Nov 9, 2019

    Love to you all.

    £50.00

  • Sarah Bushell

    Sarah Bushell

    Nov 8, 2019

    A little extra to support your amazing cause.

    £30.00

  • Anonymous

    Anonymous

    Nov 7, 2019

    Here’s hoping you soon reach your target.

    £30.00

  • Anonymous

    Anonymous

    Nov 6, 2019

John Rainsbury

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About the fundraiser
John Rainsbury

John Rainsbury

Bristol

https://www.facebook.com/Littlehero.org.uk/

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