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josephine eames raised £1,723.14 from 38 supporters
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Closed 26/08/2018
Weʼve raised £1,723 to help a little boy called William Eames who was diagnosed with Duchenne Muscular Dystrophy in 2016 at the age of 3.
- Funded on Sunday, 26th August 2018
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Story
William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.
Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
As a family we had never heard about this condition, and we are still learning.
We want to raise awareness of William and Duchenne – we need a cure, but we also need to ensure a fabulous life for our boy too so we set up Defending William Against Duchenne in January 2018.
Thank you to Jak and Yellow Submarine Swim School for Supporting us.
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Supporters
38
Jak Weddell
Jul 10, 2018
Swim fees for everyone who took part on the night of the sponsored swim
£344.50
Jak Weddell
Jul 10, 2018
Money collected from the night of the sponsored swim - sponsor money and cake sales.
£591.14
John Colebourn
Jul 7, 2018
Hey guys, I can’t make the basketball event today. I finished my contract on Wednesday and now it seems my body has decided it’s a great time to be ill. I hope this helps towards the goal.
£50.00
Katherine Jardine
Jul 4, 2018
£15.00
Floor Timmons
Jul 4, 2018
Thanks Jak for organising this fundraiser. I hope our donations help towards making Williams life a little easier. Good luck!
£20.00
Carol Whitehouse
Jul 4, 2018
Very kind thing to do a sponsered swim Jak its such a great cause. From Carol and Kian xx
£20.00
Katerina Rozvoralova
Jul 3, 2018
There ate marvelous technical equipments to help these days I hope, you will be able to buy it. All the best to your boy and to you.
£10.00
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