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£1,723raised of £200 target by 38 supporters

Weʼre raising £200 to help a little boy called William Eames who was diagnosed with Duchenne Muscular Dystrophy in 2016 at the age of 3.

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William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.

Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.

Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.

As a family we had never heard about this condition, and we are still learning.

We want to raise awareness of William and Duchenne – we need a cure, but we also need to ensure a fabulous life for our boy too so we set up Defending William Against Duchenne in January 2018.

Thank you to Jak and Yellow Submarine Swim School for Supporting us.

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    Page last updated on: 7/10/2018 7:40 AM



    • Jak Weddell

      Jak Weddell

      Jul 10, 2018

      Swim fees for everyone who took part on the night of the sponsored swim


    • Jak Weddell

      Jak Weddell

      Jul 10, 2018

      Money collected from the night of the sponsored swim - sponsor money and cake sales.


    • John Colebourn

      John Colebourn

      Jul 7, 2018

      Hey guys, I can’t make the basketball event today. I finished my contract on Wednesday and now it seems my body has decided it’s a great time to be ill. I hope this helps towards the goal.


    • Katherine Jardine

      Katherine Jardine

      Jul 4, 2018


    • Floor Timmons

      Floor Timmons

      Jul 4, 2018

      Thanks Jak for organising this fundraiser. I hope our donations help towards making Williams life a little easier. Good luck!


    • Carol Whitehouse

      Carol Whitehouse

      Jul 4, 2018

      Very kind thing to do a sponsered swim Jak its such a great cause. From Carol and Kian xx


    • Katerina Rozvoralova

      Katerina Rozvoralova

      Jul 3, 2018

      There ate marvelous technical equipments to help these days I hope, you will be able to buy it. All the best to your boy and to you.


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