Like every 4 year old, Zacky deserves to have the opportunity to be in the right learning environment to thrive and develop in the best way possible.
Zacky was diagnosed with a rare genetic condition (KCNQ2), which requires very specialised support to meet all of his educational, therapeutic and care needs, such as specialist therapies and direct access to on site care facilities.
Zacky faces every day life with a number of complex conditions:
Visual impairment
Epilepsy
Learning disability
Generalised dystonia (muscle spasms)
He is unable to talk
He is unable to feed orally and so is tube fed
He is unable to walk
Unfortunately there is a lengthy, costly and complex process that we have to go through for Zacky to be assessed correctly. The money we raise will enable us to get independent reports from:
• Occupational therapist
• Physiotherapist
• Speech and language therapist
* Educational Psychologist
* Plus independent legal representation to present Zacky’s case
This will go towards helping us to make sure Zacky’s future is in the absolute best hands at such a critical time.
Friends and family have been amazing which we are eternally grateful for, offering support, giving up their time and raising money on behalf of Zacky’s fund.
If you would like to get involved in a fund raising event or challenge please get in touch so we can support in any way we can.
To read more about Zacky’s story so far please visit the Naomi House website and go to the Family Stories
https://www.naomihouse.org.uk/about-us/family-stories/542-zacks-story
Like and share our facebook page to share our story and see regular updates of what fund raising events we are planning.