Like every 4 year old, Zacky deserves to have the opportunity to be in the right learning environment to thrive and develop in the best way possible.

Zacky was diagnosed with a rare genetic condition (KCNQ2), which requires very specialised support to meet all of his educational, therapeutic and care needs, such as specialist therapies and direct access to on site care facilities.

Zacky faces every day life with a number of complex conditions:

Visual impairment

Epilepsy

Learning disability

Generalised dystonia (muscle spasms)

He is unable to talk

He is unable to feed orally and so is tube fed

He is unable to walk

Unfortunately there is a lengthy, costly and complex process that we have to go through for Zacky to be assessed correctly. The money we raise will enable us to get independent reports from:

• Occupational therapist

• Physiotherapist

• Speech and language therapist

* Educational Psychologist

* Plus independent legal representation to present Zacky’s case

This will go towards helping us to make sure Zacky’s future is in the absolute best hands at such a critical time.

Friends and family have been amazing which we are eternally grateful for, offering support, giving up their time and raising money on behalf of Zacky’s fund.

If you would like to get involved in a fund raising event or challenge please get in touch so we can support in any way we can.

To read more about Zacky’s story so far please visit the Naomi House website and go to the Family Stories

https://www.naomihouse.org.uk/about-us/family-stories/542-zacks-story

Like and share our facebook page to share our story and

I will be doing a Brighton’s 5K colour rush run on Saturday 12th May to help raise the money for Zacky to help achieve the costs for his daily needs. The Colour Obstacle Rush is a unique event combining the fun of colour powdered runs, the thrill of an obstacle course.see regular updates of what fund raising events we are planning.