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Marfan syndrome is a disorder of the body's connective tissue, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.
www.marfantrust.org
info@marfantrust.org
Marfan Trust Registered charity number 1198847
"To support the Research Director Appeal and continue this important research."
Taliesin Owen donated
£15.00 + £3.75 Gift Aid
Anonymous donated
"In memory of Michael John Lane ‘Mike’"
Kathryn Perren donated
£25.00 + £0.00 Gift Aid
"In God’s safe keeping. Reunited with son Paul."
Charlie Megahey donated
"In loving memory of Helen and sending all our love to family & friends, Sarah, Nik & Caitlin xxx"
Sarah, Nik & Caitlin donated
£50.00 + £12.50 Gift Aid
Kayleigh Norman has raised $10,115.80 so far
In memory of Rory
Diane Franks-Herbert has raised $10,023.37 so far
I'm We are raising money for Diane Franks-Herbert because of an untimely death due to Marfan Syndrome
Annie Yarwood has raised $5,770.66 so far
Simon Yarwood
Hannah Shepherd has raised $2,494.01 so far
Hannah and Caroline Skydive in Memory of Jonny Edwards
David Burke has raised $2,142.76 so far
David's page
Jessica Pressland has raised $2,026.71 so far
I'm Raising awareness of Marfan for Jessica Pressland because My brother Justin died of Marfan Syndrome
