Ros1ders UK (Lung Cancer Charity)

We Raising awareness of rare lung cancer to Improve survival rates across the UK

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Charity Registration No. 1212647

julia@ros1ders-cancer.uk

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About us

We are a new charity, lead predominantly by patients. We have a rare gene mutation ros1+ that occurs in only 2% of lung cancer patients. Mostly non-smoking, predominantly woman. The majority are stage 4 by the time they're diagnosed as symptoms vary and are dismissed as not being serious due to non-smoking background. Around 1000 patients are diagnosed annually. It is a very aggressive cancer so early diagnosis is essential. Although it’s aggressive, it can be managed by targeted therapy. We are dedicated to improving the life expectancy. We want to raise awareness that just because our numbers are small, we are not insignificant. More importantly, we want ros1 patients to know that we’re here and there is a community and support waiting for them. Anyone with lungs can get Lung Cancer.