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Stickler Syndrome Support Group aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis for adults and children with the condition to help preserve vision, particularly the prevention of blindness in children and adults.
Stickler Syndrome Support Group Registered charity number 1060421
"thanks for the recent letter re: passing on data to camdridge medical team, here's a small donation to cover the expenses"
Cinzia Taffagli donated
£10.00 + £2.50 Gift Aid
"A great organisation that limited exposure but does a fantastic job a very deserving organisation"
Roy Flint donated
£100.00 + £25.00 Gift Aid
"Simply doing my bit to try and help"
"My local pub does a weekly quiz, with each month featuring a different charity. January was for Sticklers."
Tracy Greenhalgh donated
£104.50 + £0.00 Gift Aid
"This donation is instead of sending out thank you cards for Christmas presents."
Rebecca O'Brien donated
£20.00 + £0.00 Gift Aid
"Happy christmas everyone this donation is instead of sending cards"
£50.00 + £12.50 Gift Aid
Angela Fisher has raised $4,006.51 so far
I'm Running for Stickler Syndrome UK for Angela Fisher because they provide support to families like mine
Anne Mcloughlin has raised $1,714.00 so far
Samantha Newington has raised $1,712.43 so far
I'm so to raise awareness and support for Samantha Newington because of its amazing work at transforming lives
Simon Denson has raised $1,643.15 so far
I'm I am running the 2018 London Marathon for Simon Denson because I want to support a less well-known charity
Julie Kitney has raised $1,577.79 so far
I'm Finally I am running it, and for such a good cause for Julie Kitney because I’ve seen the ill effects of stickler Syndrome :(
Anna Choules has raised $1,091.51 so far
I'm I"m running the London Marathon 2018 for Anna Choules because i've seen how if affects lives