On May 9th 2015, as many people as we can muster will be walking 10, 20, 40 and 60km across the South Downs to help speed treatment for Rett Syndrome.
These distances may seem daunting, and no doubt there will be blisters, cramp, pain, blood and tears for most of those involved. But we are relentless in our drive to cure our girls, and these challenges are nothing compared with the daily difficulties our daughters face.
Many of our girls cannot stand, let alone walk a single step. Alongside the additional challenges they face daily, they are locked in bodies which betray their minds. Aware and engaged, yet dependent on others for every daily function, they are often frustrated and distressed. Wouldn't you be?
It should not be like this. It doesn't have to be like this. One day, it won't be like this. Read about the very real potential for treatment and ever-developing research here.
Thank you for walking, supporting and sponsoring, and bringing science a step closer to curing our girls.