My story

The Team so far....Stewart Rush, Lesley Zimmerman, Craig Robinson, Andrew Baxter, Sandy Simpson, Rory Fitzgerald, Liz Dilley, Erika Cule, Lisa Stansbie, Kate Robarts, Lesley Cook, Jeremy Storr, Nick Duce, Barry Slater, Emma France, Simon Joyce, Phil Sears, Oliver Steed, Nicola Latty, Graham Hardie, Barrie Walker, Raoul Downey, Dusan Svoboda, Catherine Reeds, Kimberley Broughton, Julia Horning, Richard Lawrance, Terry Wright, Jane Asher...

 

On the 4th Oct '08 at the Wycombe Sports Centre, each competitor is going to attempt to swim 1 mile on the hour, every hour, for 24 consecutive hours! Burning between 8000 and 11500 calories each, equivalent to 15 roast dinners hence sustaining food intake and keeping it down is going to be a further essential challenge!

 

With each individual person swimming further than the English Channel, we're also hoping that during this mammoth challenge we claim ourselves a new world record - that of 'covering the most miles by a team in any one 24 hour period' - 480 miles!!! Come along and support us. It should be a great day!

 

We hope to make A LOT of money for ACTION DUCHENNE and for this to be a national event every year.


THE EVENT:

Saturday 4th October 2008

Starting at 9am for 24 hours!

High Wycombe Sports Centre

Marlow Hill
High Wycombe
Bucks
HP11 1TJ
United Kingdom
 


WHAT IS DUCHENNE MUSCULAR DYSTROPHY?

Duchenne muscular dystrophy is a genetic disorder caused by an error in the dystrophin gene. The condition causes progressive muscle weakness as the muscle cells break down and die.

 

Duchenne muscular dystrophy is a rare condition. About 100 boys are born with the condition in the UK each year and there are about 1,500 boys with the disorder living in the country at any one time.


Duchenne muscular dystrophy, named after the doctor who first studied this specific condition in the 1800s, mainly affects boys, with extremely rare exceptions.

Most affected boys show the first symptoms when they are aged between one and three. The features include:

* being unable to run or jump as well as their peers
* a difficulty climbing stairs
* a difficulty getting up from the floor

As they get older and the condition progresses they may be unable to walk as far or as fast as other children, occasionally even falling down. Some boys may also have learning and/or behavioural difficulties which start to show at this stage.

 

WHY ACTION DUCHENNE?

Action Duchenne (Formerly PPUK) exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy. Duchenne is so severe that young men are totally paralysed by late teens and die young from respiratory or heart failure. Your donations and support will help us end this tragic waste of young lives.


PLEASE SUPPORT US AND HELP SAVE OUR KIDS LIVES!


YOU CAN MAKE A DIFFERENCE.

My gallery 2

My Teams

My company

My charity

Action Duchenne

Action Duchenne

Charity Registration No. 1101971

Action Duchenne is a national charity that aims to find a cure for Duchenne, a severe genetic muscle wasting disease. The condition affects mainly boys and without treatment most of these young men are completely paralysed by their early teens and die by their late teens or early 20s. To ensure we do not lose another generation of young people to this terrible disease we need more funding for research and treatment.

Donations 286

Thanks to all who sponsored me from Birmingham and special thanks to Lynn for collecting all the money.

Donation by Lisa Stansbie on 10/12/08

£55.00

+ £15.51 Gift Aid

Thanks to Andy G, Ruth S and Mrs Lees for their unsolicited donations. Very kind.

Donation by Sandy Simpson on 08/12/08

£20.00

Donation by ian walton on 06/12/08

£2.00

+ £0.56 Gift Aid

For Kate and the team.Well done.

Donation by Patty and Jan on 03/12/08

£10.00

From his family, their work colleagues & friends. Well Done to all, such a great achievement for a worthwhile cause!!

Donation by Barrie Walker on 21/11/08

£183.00

+ £51.62 Gift Aid

Lisa (Leeds)

Donation by Paddy Harris on 18/11/08

£20.00

+ £5.64 Gift Aid

Mark and Family

Donation by Stewart Rush on 17/11/08

£145.00

+ £40.90 Gift Aid

heres the start of my sponsor money more to come!!sorry its so late

Donation by cat reed on 13/11/08

£50.00

well done Jeremy and Stuart!

Donation by Clare Matthews on 04/11/08

£20.00

+ £5.64 Gift Aid

Well done Sandy and the team - I am truly amazed this incredible challenge was ever even contemplated nevermind completed!!

Donation by Helen Orme on 29/10/08

£10.00

+ £2.82 Gift Aid

Admiration to Dusan, the Leeds 4, and all the swimmers who took part

Donation by Matthew White on 24/10/08

£20.00

+ £5.64 Gift Aid

Well done Team - So proud of you all.

Donation by Stewart Rush on 24/10/08

£600.00

+ £169.23 Gift Aid

congratulations Liz!

Donation by Audrey Fenwick on 24/10/08

£10.00

+ £2.82 Gift Aid

A brilliant achievement well done

Donation by sally Thomas on 23/10/08

£10.00

well done Lisa

Donation by Carol Green on 22/10/08

£12.00

+ £3.38 Gift Aid

Brilliant!

Donation by Don, Van,Janet and Dad on 20/10/08

£100.00

+ £28.21 Gift Aid

Congratulations Stewart on a sterling effort and the best of luck to you and your family.

Donation by Jane Squires on 14/10/08

£50.00

+ £14.10 Gift Aid

A bit belated, but better late than never .... well done!

Donation by Liz Mould on 14/10/08

£5.00

+ £1.41 Gift Aid

Well Done Mr Robinson, you should be very proud of yourself!

Donation by Jono on 14/10/08

£25.00

+ £7.05 Gift Aid

Great. Well done!

Donation by christine redgrave on 13/10/08

£5.00

+ £1.41 Gift Aid

Well done Craig!

Donation by Linda & Emma on 12/10/08

£10.00

+ £2.82 Gift Aid

A big well done to you all!

Donation by Thea & Rich Dannatt on 10/10/08

£25.00

+ £7.05 Gift Aid

Well done!

Donation by Charlie Chalk on 10/10/08

£10.00

WELL DONE LIZ WE ARE ALL VERY PROUD OF YOU!!

Donation by THE BIRDS on 09/10/08

£25.00

+ £7.05 Gift Aid

Well done Stewart

Donation by Alan Gasser on 07/10/08

£20.00

+ £5.64 Gift Aid

Donation summary

  • * Online donations£7,068.32
  • Offline donations£4,888.97
  • Text donations£0.00
  • Total raised£11,957.29
  • Gift Aid£1,775.23

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