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Darcie & Evie Chapman are the beautiful twin girls of my best friend, Natalie and her husband, Mark. Darcie & Evie have a very rare form of epilepsy called Dravet Syndrome. This condition affects mainly motor skills and speech. Darcie & Evie are 2 and a half and cannot yet walk and cannot say many words.Imagine how hard it is for a mother to wonder if she will never hear her children say “mummy”.Imagine how hard it is living with a syndrome that nobody knows about…..siezures, behavioural & development delays, speech issues, sensory disorder, sleep difficulties, balance issues, increased risk of SUDEP, rare and catastrophic epilepsy, regression, diminished quality of life, feeding tubes, ataxia, reduced life expectancy……………….This is Dravet syndrome.On the 18th May 2013, we will be taking part in the Yorkshire 3 Peaks Challenge. A "walk" that takes in 3 peaks in the Yorkshire Dales, covering approx 25 miles in 12 hours!

Please donate whatever you can to this extremely worthwhile charity.

Thank you.

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