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About our charity
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DebRA
EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.
Charity Registration No
1084958
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| Fundraising target: |
£10,000.00 |
| Our donations to date
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£
10,502.76
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| Our personal message: |
Fiona and I have now completed our Great Wall of China Trek to raise funds for DebRA and create further awareness of the condition Epidermolysis Bullosa (EB).
The inspiration behind our challenge is Mia, who was born on 14th September 2003 to my friends Maxine and Bryan. Mia was born with Herlitz Junctional EB, unfortunately, this particular form of EB is terminal.
You can continue to sponsor on line until the 1st June 2005. After this date, all donations and sponsorship can be sent direct to DebRA. Many thanks to those who have sponsored us, on and offline.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Thank you for visiting our fundraising page.
Best wishes, Tracy & Fiona
For more information, please visit www.debra.org.uk or you can email Tracy & Fiona at chinatrek2005@aol.com
NB:£7,829 raised through fundraising events since Sept 04.
** Offline sponsorship currently totals £3,000 and still growing :-))
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