Alasdair 's page
Event: Alasdair Hodge's fundraising
£10,230.00 raised of £3,000.00 target
£10,230.00 raised so far
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On 25 June 2011 I will be riding from London to Paris covering over 100miles a day whilst supporting the DEBRA charity who support those affected by Epidermolysis Bullosa (EB). www.debra.org.uk
There is a little boy called Mason White who suffers this serious, painful and life threatening condition, Recessive Dystrophic Epidermolysis Bullosa (RDEB).
RDEB is a genetic condition that causes blistering and shearing of the skin and internal linings from the gentlest friction. The 'hooks' which attach the epidermis (top layer of your skin) to the dermis (the thicker deep layer of your skin) are absent which means the skin layers easily separate and continuously blister.
When Mason was born, the skin was missing from his right foot and leg and the top of his left foot. The severity of Mason's condition means that he has already been critically ill after the lining of his oesophagus came away. He now cannot swallow food, fluid or medication and he has to be fed through a Gastrostomy button in his stomach.
Mason also has to cope with sores and blisters that constantly form on his skin, his body is bandaged and he lives a routine of lancing blisters, bandaging, coping with the pain and making regular trips to the hospital. Despite all of this Mason keeps on smiling.
DEBRA funds 10 specialist EB nurses and 3 Social Care Managers to help children, adults and families affected by this cruel condition.
Over the next three years DEBRA wishes to commit significant funds to further their aim of finding lasting and effective treatments for all types of the condition.
So please dig deep and support DEBRA by not only donating but by helping to create awareness of this cruel, painful and life threatening condition.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
Charity Registration No. 1084958
DEBRA helps families affected by EB (Epidermolysis Bullosa), a genetic condition which causes the skin to blister and shear at the slightest friction. DEBRA provides a team of nurses and social care staff to work with families affected by EB and commissions world-leading research into the condition.
Good luck Al!
Donation by Rikhil Agarwal on 10/06/11
+ £10.00 Gift Aid
Donation by Trez on 10/06/11
Invest in the gel saddle, worth every penny... Bon chance.
Donation by Stuart Grostern on 10/06/11
Good luck Al, rather you than me!
Donation by Niru on 10/06/11
Walking like a cowboy? You won't even be walking...
Donation by Duncan Scott on 10/06/11
Donation by Andrew Kellner on 10/06/11
Donation by Anonymous on 10/06/11
+ £25.00 Gift Aid
Best of luck!
Donation by Karen McCartney on 10/06/11
Donation by Sadat Mannan on 10/06/11
- * Online donations£10,230.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£10,230.00
- Gift Aid£2,545.00
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