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Alexander Mcgarrell is raising money for Foundation for Prader-Willi Research UK
“Alexander Mcgarrell's fundraising”

on 9 May 2011

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The aim of Foundation for Prader-Willi Research UK (FPWR UK is to overcome the challenges of Prader-Willi Syndrome (PWS) through advancing research. High-quality research leads to more effective treatments and a better quality of life. FPWR UK was founded in 2010 by parents of children with PWS.

Story

<p><span style="font-family: arial, helvetica, sans-serif; font-size: 14px; color: #1c1c1c; line-height: 20px;"> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">Thanks for taking the time to visit our justgiving page.</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">On the 25th June a group of 16 of us will be taking part in a marathon game of 5 a-side football at Wellington Place in Leeds City Centre. Our aim is to play constantly for 24 hours! Each team will have 3 substitutes but it is expected that each player including the substitues will still play upto 15 hours of football!!</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">We are raising money for the Foundation of Prader-Willi Research (FPWR) -&nbsp;<a style="outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; color: #2a42c6; text-decoration: underline; cursor: pointer; background-position: initial initial; background-repeat: initial initial; padding: 0px; margin: 0px; border: 0px initial initial;" href="http://www.fpwr.co.uk/">http://www.fpwr.co.uk/</a></p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">Prader-Willi Syndrome occurs in approximately 1 in 15,000 children. Early symptons are slow muscle development and vairous other symptons which occur during childhood and adolescence. At some point, usually between the ages of 1 and 6, the child will develop insatiable hunger. Just imagine never feeling full! This can lead to severe childhood obesity and all of the health risks associated with it, as well as the additional risks of a permanently hungry child eating anything within reach.</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">Being a reasonably unheard of condition means that it does not receive as much attention and funding as other childhood conditions or illnesses and this is what FPWR want to change. Every small development in research takes doctors and patients one small step closer to understanding the condition that is effecting their child - not a big ask when you think about it!</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">We would really appreciate it if you could spare some of your hard earned pocket money in order for us to raise our target and help raise money for a rare condition that currently has no cure. For further information on Prader-Willi syndrome please see the link to the website.</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted e-mails. Once you donate, they'll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it's the most efficient way to donate - we raise more, whilst saving time and cutting costs for the charity.</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">Loads of thanks in advance,</p> <p style="margin-top: 0px; margin-right: 0px; margin-bottom: 10px; margin-left: 0px; outline-width: 0px; outline-style: initial; outline-color: initial; font-size: 14px; vertical-align: baseline; background-image: initial; background-attachment: initial; background-origin: initial; background-clip: initial; background-color: transparent; line-height: 19px; background-position: initial initial; background-repeat: initial initial; padding: 0px; border: 0px initial initial;">All involved in the football marathon.</p> <div></div> </span></p>

Donation summary

Total
£20.00
Online
£20.00
Offline
£0.00

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