EB is a genetic skin blistering condition which currently affects about 5,000 people in this country including my young friends Grace and Freddie Fincham. I have seen first hand how debilitating this illness can be, and how important the support of Debra is to families living with this condition.

EB doesn't just affect the skin, in many cases the blistering affects internal body linings such as the mouth and oesophagus, sometimes resulting in malnutrition as the eating of solids is extremely difficult. People with the most severe types of EB are at a high risk of developing skin cancers, shortening lives by approx 30-40 years. In its most severe form the condition is fatal in infancy.

There is still no effective treatment or cure, although Debra is working hard supporting research to hopefully make this a reality in years to come.

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