Ali and Nico's Cure for Dylan!

ALISON TSANG is raising money for Reverse Rett

Participants: Nico Diara

Donations cannot currently be made to this page

British 10k · 8 July 2012 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

My little niece, Dylan, has Rett Syndrome. She was diagnosed shortly after her 2nd birthday.

Rett’s is a debilitating disorder which is like Parkinson's, cerebral palsy and autism all in one.  Although rare, every 5 hours a girl is born with Rett Syndrome.  However, there is little, if any, government funding to help those affected. 

It is not hereditary. It can occur in any family at any time.  It is the most physically disabling of the disorders on the autism scale.

It is likely that my niece, like most Rett girls, will suffer from epilepsy, breathing difficulties and scoliosis. Most girls with Rett Syndrome will end up in a wheelchair being fed through a tube. Life expectancy is poor.

It doesn’t have to be this way. Please help scientists to develop a cure.

Rett Syndrome has the potential to be the world’s first curable brain disorder.

Please sponsor Nico and I to help fund this amazing work and potentially save my little niece’s life.

Thank you so much! 

 

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Donation summary

Total
£1,731.00
+ £392.75 Gift Aid
Online
£1,731.00
Offline
£0.00

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