<p>I'm running the Brighton Marathon, my first (and most likely only!) marathon, for Rett UK. This is the main UK charity for Rett Syndrome. They're a small charity, but do important work in supporting families with children and adults with Rett Syndrome, and are especially valuable to those who are recently diagnosed or have no other support from family or friends.</p> <p>I know times are tough all round, but please try and donate a little to help them continue their important work! We personally are very grateful to them for helping us through the difficult early stages of dealing with Molly's condition, and for providing a hub for information, resources and contacts to be shared amongst those affected.</p> <p>Thanks!</p> <p>Amanda</p>