Andrea Colbourne
Andrea's (very first) Wilmslow Half Marathon
Fundraising for Corpal - Supporting those with Agenesis of the Corpus Callosum and Aicardi Syndrome
Story
My Very First Half Marathon
By Andrea Colbourne Aged 42¾
Oh my gosh, YES, you DID read that right, I am doing a half marathon. My first half marathon. This is the girl who said "no way ever" was I interested in doing a marathon, let alone a half one. The only Marathon's I'm interested in were the chocolate variety and now they're called Snickers!! Anyway I digress.
My other fundraising pages were a huge success and that's all down to you, the people who donate, and I would like to continue that theme with raising awareness for a charity that's called Corpal.
Corpal is a not-for-profit support group and charity run by parents, families and carers of children and adults who have ACC or Aicardi Syndrome.
"Luke is nearly 8 and has agenesis of the corpus callosum.
Agenesis of the Corpus Callosum (ACC) is a rare neurological condition in which the Corpus Callosum, the major “pathway“ for information which links the two hemispheres of the brain, fails to develop fully.
The effects of the condition are variable; ranging
from normal development (where the condition may be undetected or be revealed
incidentally), through mild developmental delay to severe learning difficulties,
epilepsy, visual impairment and delayed motor development.
Luke has severe learning difficulties, behavioural and social difficulties,
hypermobile joints and a mixture of high and low tone which is why he will never
be able to walk.
He attends a special needs school and has huge mix of specialists who
help him with his daily struggles. He wears splints on his legs 24 hours a day
now and has an intensive physio regime. He needs help with everything from
having a wash, changing his nappy, brushing his teeth to eating and
drinking.
He's a very loving little boy with a big heart and an amazing
sense of humour....but his problems have changed our lives in a massive way and
his disabilities effect everything we do and the way we do it.
Thankfully in his early days we found Corpal and were able to speak to others in similar situations. To this day Corpal is a lifeline for our family.
Corpal is a charity that support parents and carers who have children with
Acc. They are the first port of call after diagnosis.
It is devastating to discover that your child has a rare medical condition and Corpal recognises the need for emotional support.
Corpal can supply information on the condition and gives the chance for parents to contact other families and organisations
Corpal supports the newly diagnosed, arranges meetings for families, shares information and raises awareness of the condition.
Every bit raised is massively important to the charity and even a small amount can be what is needed to post out an info pack to a new family or to help run the website ...which may then be found by the newly diagnosed family".
I'm raising money and awareness of Corpal Charity for adults and children like Luke.
So all that said, thank you so much for taking the time to visit my JustGiving page. However much you are kind enough to donate, I'd be extremely greatful if you can pass any links on via email or social media, just so we can raise more awareness. Thanks in advance.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.