Andrew Frawley
The ride is done but we are still working to raise awareness and money.
Fundraising for Kennedy's Disease UK KD-UK
Story
It is time to say thanks for your generous sponsorship for my Chamonix to Venice Ride.
Some quick facts of our adventure:
- 26 of us each rode 1000+ kilometres and 22,000+ vertical metres
- Cycling is a team sport. We would never have made it without the support team and team of riders.
- Bled, cried, vomitted, cursed, itched and/or melt down! - Each team member did all or most of these.
- I have so far raised £2,309 for Kennedys Disease UK. Over double my original target.
- We, as a team, have raised a staggering £83,000. Well over double our target.
- We are still trying to raise money and awareness.
Our new target is £100,000.
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Thanks for visiting my JustGiving Page!
I am in a team of cyclists raising money for the charity, Kennedy's Disease UK.
A friend of ours, once a fit and seemingly healthy dad to two little girls, is suffering from this awful disease. KD-UK is the only UK-based charity raising funds to heighten awareness and fight it.
We will cycle from Chamonix to Venice this July to support the charity's incredible work.
The cost of the ride (support crew, saddle cream (lots of), food and accommodation etc) is 100% funded by the riders so all donations in their entirety go to the charity.
The Disease?
The hereditary disease is a degeneration of lower motor neurons within the spinal cord and brainstem. This causes progressive wasting of the muscles.
Symptoms usually first appear when the person is aged between 30 and 50. It begins with painful cramping and uncontrollable muscle spasms and gradually attacks most of the sufferer’s muscles, making it difficult to even swallow liquids.
We want to help make sure that this rare, often misdiagnosed disease is recognised as well as making people aware of the effect it has on sufferers and their families. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them find a cure.
There is no cure for Kennedy’s Disease and no current treatment available.
The Challenge?
We are cycling from Chamonix to Venice. Not the easy way either! The route takes in EVERY steep road, scenic col and mountain view we could find from France's mountain Mecca to Italy’s Cultural Mecca.
It’s an epic 8 day grind where we will each ride more than 1000 km with well over 20,000 metres of climbing. Some days we will be peddling more than 170 kms.
We completed the Route des Grandes Alpes three years ago for the same cause...but this is different. Longer, steeper and bigger climbs, including the monstrous Stelvio pass from both sides.
It's difficult to describe the challenge but five of the days would easily qualify as tough Tour de France stage.
In all:
- 8 days from 16 to 23 July, 2016
- 1024 kms
- 22 major climbs
- 19,285 metres of ascent, just on those main climbs
- Biggest climb is 24.8 kms at a 7.5% average
- 2 days over 170 kms each
If you have read this then we are already in front, as hopefully you now know more about a very little known disease.
If you have the means to donate something towards the charity so they can continue the good work then it would be very much appreciated.
A friend of ours, once a fit and seemingly healthy dad to two little girls, is suffering from this awful disease. KD-UK is the only UK-based charity raising funds to heighten awareness and fight it.
We will cycle from Chamonix to Venice this July to support the charity's incredible work.
The cost of the ride (support crew, saddle cream (lots of), food and accommodation etc) is 100% funded by the riders so all donations in their entirety go to the charity.
The Disease?
The hereditary disease is a degeneration of lower motor neurons within the spinal cord and brainstem. This causes progressive wasting of the muscles.
Symptoms usually first appear when the person is aged between 30 and 50. It begins with painful cramping and uncontrollable muscle spasms and gradually attacks most of the sufferer’s muscles, making it difficult to even swallow liquids.
We want to help make sure that this rare, often misdiagnosed disease is recognised as well as making people aware of the effect it has on sufferers and their families. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them find a cure.
There is no cure for Kennedy’s Disease and no current treatment available.
The Challenge?
We are cycling from Chamonix to Venice. Not the easy way either! The route takes in EVERY steep road, scenic col and mountain view we could find from France's mountain Mecca to Italy’s Cultural Mecca.
It’s an epic 8 day grind where we will each ride more than 1000 km with well over 20,000 metres of climbing. Some days we will be peddling more than 170 kms.
We completed the Route des Grandes Alpes three years ago for the same cause...but this is different. Longer, steeper and bigger climbs, including the monstrous Stelvio pass from both sides.
It's difficult to describe the challenge but five of the days would easily qualify as tough Tour de France stage.
In all:
- 8 days from 16 to 23 July, 2016
- 1024 kms
- 22 major climbs
- 19,285 metres of ascent, just on those main climbs
- Biggest climb is 24.8 kms at a 7.5% average
- 2 days over 170 kms each
If you have read this then we are already in front, as hopefully you now know more about a very little known disease.
If you have the means to donate something towards the charity so they can continue the good work then it would be very much appreciated.