My story

Many thanks to all who supported me. The page remains open until the end of December.

Please see the results at www.agsd.org.uk.

05/08/10 - We finished at the Senedd, Cardiff Bay on Monday 2 August, as planned! An amazing feeling and an outcome I could hardly dare believe when we set off from the Great Orme on 2 July. We made the ITV Wales 6pm News.  It has been a huge success for all the walkers, inspired hundreds of other McArdle people around the world who followed us, and the benefits will go on rippling out through the planned DVD and now a week for many others with McArdle's next year. - Andrew

 


I suffer from McArdle Disease, a very rare disorder of the muscles which causes pain on exercise and every day activities. It causes breakdown of the muscles, which can lead to kidney failure.  

From 2nd July to 2nd August 2010 I am going to "Walk over Wales" - over from North to South and over the mountains. I have to use special techniques to achieve this, and I cover about half the daily distances of other people. It's 210 miles and 35,000 feet of ascent, but I am determined to do it.

 

I had symptoms from age 4 but was diagnosed only at 30 and had no help for another 20 years. By luck I did many of the right things in my early years and I am not severely affected, although I live with pain every day and many activities are a struggle. Other people with McArdle's are not so lucky.

 

I want to raise awareness of the disease so that children are diagnosed early. They can then have suitable advice about what type of exercise/activity to avoid and how to exercise safely. I want to raise money to enable AGSD-UK (which supports McArdle Disease research and provides information to people around the world) to make a DVD to help people with the condition cope the best they can and improve their quality of life.

 

JustGiving is an easy, secure and efficient way to donate. They send your money directly to AGSD-UK and reclaim Gift Aid where eligible. Every penny goes to AGSD-UK, we are all paying our own way on the walk. Thank you.

My gallery 6

My Teams

My company

My charity

Association for Glycogen Storage Disease (UK) Ltd

Association for Glycogen Storage Disease (UK) Ltd

Charity Registration No. 1132271

Support group for people with glycogen storage diseases, very rare genetic disorders of metabolism, and their families. We offer: web site, newsletter, annual conference/workshops, promote understanding of and research into GSDs which are often disabling and life-limiting. http://www.agsd.org.uk

Donations 72

 

well done andrew for providing an example to others on how to overcome adversity. say hello to Peter

Donation by Gareth Jones on 13/07/10

£5.00

+ £1.41 Gift Aid

 

Donation by Richard Lewis on 12/07/10

£10.00

+ £2.82 Gift Aid

 

Best of luck, it was great walking with you yesterday

Donation by Rosaline Quinlivan on 12/07/10

£30.00

+ £8.46 Gift Aid

 

Donation by Bryan Hibbard on 11/07/10

£25.00

+ £7.05 Gift Aid

 

Wishing you gentle sunshine and soft rain and good walking. Hope the walk goes well.

Donation by Basil & Anne Wolf on 09/07/10

£25.00

+ £7.05 Gift Aid

 

A donation from Jean Booker

Donation by Peter Wakelin on 08/07/10

£10.00

 

Good luck Andrew and party. Poli poli as they say on Kili.

Donation by Alan Craig on 06/07/10

£50.00

+ £14.10 Gift Aid

 

Well done Andrew and friends, keep it up, watching your blog everyday and enjoying your wonderful pictures!

Donation by Pam Usher on 06/07/10

£20.00

+ £5.64 Gift Aid

 

Thank Sally for this donation! Good luck Pauline and Ivor

Donation by Pauline Jones on 05/07/10

£15.00

+ £4.23 Gift Aid

 

Donation by Nicolas McDowall on 05/07/10

 

Hope the weather holds for you! Good luck.

Donation by Jenny Hall & Paul Sambrook, Trysor on 05/07/10

£20.00

 

Best of luck Andrew. This is an immense effort so well done for even starting!

Donation by Richard Tyler on 04/07/10

£50.00

+ £14.10 Gift Aid

 

Don't get too wet! Have a great walk.

Donation by Clive Tonks on 03/07/10

£100.00

+ £28.21 Gift Aid

 

Well done Andrew, you're an inspiration to us all. Hope you enjoy the walk and look forward to your arrival in Mid Wales.

Donation by Linda Green on 03/07/10

£10.00

 

Good Luck wish we were walking too

Donation by John Foulk on 03/07/10

£25.00

+ £7.05 Gift Aid

 

good luck Andrew i couldnt do it just wish i could

Donation by maurice macdonald on 02/07/10

£50.00

 

Well done Andrew - don't forget to enjoy yourself!!

Donation by Chris Morgan on 01/07/10

£50.00

+ £14.10 Gift Aid

 

All the very best for wind, rain heat and incipient blisters. Will be with you all the way, Judith and Herman

Donation by Judith van Dam on 01/07/10

£42.00

+ £11.85 Gift Aid

 

Good luck Andrew - I've got great admiration for what you are doing.

Donation by Jane Dean on 01/07/10

£10.00

+ £2.82 Gift Aid

 

Great stuff Andrew. I know you'll do it.

Donation by Richard Kite on 01/07/10

£15.00

 

WELL DONE ANDREW Best Wishes

Donation by John Davey on 01/07/10

£50.00

+ £14.10 Gift Aid

 

All the best Andrew. Wish I had the time to join you. Enjoy it!

Donation by Stuart Boyle on 01/07/10

£30.00

+ £8.46 Gift Aid

 

Good luck Andrew, and thanks to Peter for the news

Donation by ralph griffiths on 01/07/10

£20.00

+ £5.64 Gift Aid

 

I'd love to join you, but can't: have a great time.

Donation by Andrew Green on 30/06/10

£20.00

+ £5.64 Gift Aid

 

am much in admiration of your enthusiasm and willingness to undertake such a challenge.

Donation by JULIA GEMIE on 30/06/10

£15.00

Donation summary

  • * Online donations$4,272.23
  • Offline donations$194.05
  • Text donations$0.00
  • Total raised$4,466.28
  • Gift Aid$1,024.97

* Charities pay a small fee for our service. Find out how much it is and what we do for it.