My story

Silent killer....

PKD stands for Polycystic Kidney Disease. It is more prevalent than multiple scelorosis and affects more people than the sickle cell anaemia, Down's syndrome, haemophilia, muscular dystrophy and cystic fibrosis combined!!!! However, there is less awareness of this particular disease and therefore research is not as well funded!!!!!

PKD causes cysts to grow on both kidneys, which reduces kidney function and can lead to dialysis :(

My Family's Past

My Dad had this disease and has now had both of his kidneys removed and therefore is now on dialysis, waiting for a transplant. As his kidneys failed he became more ill to the point where he was taken into hospital for a long time as he was continually bleeding out. I remember trying to do my GCSE's while this was happening and it being a very hard year. Even though now he is on haemodialysis the problems haven't ended there and is at this moment in hospital as the doctors try to figure out what it wrong with him. Everyday is a constant battle. 

When I was 12 years old I was diagnosed with PKD and know that one day in the future that could be me too. They have caused me pain but so far everything is looking good. Nevertheless I still have to be careful about my salt intake to ensure I keep my blood pressure low, which can be a pain.

The Future with the PKD Charity

I am currently studying pharmacy and know how difficult it is to get new treatments to market. The PKD charity helps raise awareness and provides support for people affected by PKD and also funds research into the causes of PKD, the possible treatments and one day a cure. The more money we can raise for the PKD UK charity  the more people we can help and so there is a better chance of finding a cure. Maybe we will have a better chance than my Dad and any future children, including possibly my own to have an even better chance.

 

What better way to invest in the future? I am going to walk 12 miles for everyone who has and knows of someone with PKD, please, please sponsor me. Any money you could please give would be much appreciated.

To keep track of our training progress check out our blog:-

http://12milekidney.wordpress.com

or our twitter feed:-

https://twitter.com/#!/12milekidney

We now also have a facebook page, which you can like to find out more details.

https://www.facebook.com/12milekidney 

Thank you so much.

Ashleigh and Josh

 

(Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.)

My updates 6

wahoo over 50% and we have a competition going. For information go to http://12milekidney.wordpress.com/ Thank you

25/04/12 13:34

wahoo nearly half-way and very excited :D

24/04/12 15:18

only 74 days to go....

10/04/12 16:42

Managed to walk 12 miles in one day up in Cannich!!!! Got some photo's going up on the blog with all the rest at http://12milekidney.wordpress.com/ check it out :D

09/04/12 15:49

been for a walk and photos are going up on facebook and on here at some point soon too :)

05/04/12 15:34

My charity

The Polycystic Kidney Disease Charity

The Polycystic Kidney Disease Charity

Charity Registration No. 1085662

The PKD charity aims to provide information and support to patients and families affected by polycystic kidney disease, support research into both determining the causes of and discovering possible treatments and to raise awareness of PKD, providing information to patients, the public, the medical community and the media.

Donations 42

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Well done, heres to reaching your target.

Donation by Uncle Spud on 02/07/12

£25.00

+ £6.25 Gift Aid

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Much love to you both! Well done Josh and Ash!

Donation by Tim Mycock on 24/06/12

£20.00

+ £5.00 Gift Aid

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Sorry this took so long! Good luck!

Donation by Katherine Bellinger on 13/06/12

£5.00

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Good luck and hope the sun shines for you!

Donation by lucy scott on 02/06/12

£10.00

+ £2.50 Gift Aid

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Good Luck!

Donation by Martyn Fyne on 16/05/12

£10.00

+ £2.50 Gift Aid

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good luck - hope you don't get too many blisters !!!

Donation by Louise Sprott on 03/05/12

£10.00

+ £2.50 Gift Aid

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Enjoy the walk Ashleigh, well done!

Donation by Wendy Codling on 02/05/12

£10.00

+ £2.50 Gift Aid

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What a good cause, well done for doing this, and good luck! :)

Donation by Tracey Russell on 02/05/12

£5.00

+ £1.25 Gift Aid

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Donation by Mark Collins on 02/05/12

£10.00

+ £2.50 Gift Aid

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Good Look Ashleigh and Josh from Julia (friend of your Aunty Jo)

Donation by Julia Shaw on 02/05/12

£5.00

+ £1.25 Gift Aid

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Hope you have a lovely walk. Good luck. x

Donation by Samantha Eastwood on 02/05/12

£10.00

+ £2.50 Gift Aid

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Good luck Ashleigh

Donation by Michael Goodier on 01/05/12

£10.00

+ £2.50 Gift Aid

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Good Luck!! :)

Donation by Craig Garner on 30/04/12

£5.00

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Thanks for being my 700th Follower on Twitter. @placeshaper. Good luck ! from @placeshaper

Donation by lisa Durkin on 29/04/12

£3.00

+ £0.75 Gift Aid

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To get over 50%!!

Donation by Jen Slocombe on 25/04/12

£8.00

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Good cause Ashleigh I did the parachute jump last December for PKD. from Jane Bird xx

Donation by Carol Bartles on 24/04/12

£55.00

+ £13.75 Gift Aid

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We hope the weather is good to you. Love from Great Aunty Joyce & Great Uncle Chris xx

Donation by Carol Bartles on 24/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Ashleigh. Love from Great Nanny and Great Grandad xxxx

Donation by Carol Bartles on 24/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck Ashleigh we are so proud of you. Lots of love Nan and Grandad xxxx

Donation by Carol Bartles on 24/04/12

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 23/04/12

£20.00

+ £5.00 Gift Aid

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A great cause :)

Donation by Anonymous on 06/04/12

£15.00

text donation

Donation by Anonymous on 05/04/12

£1.00

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good luck, great cause x

Donation by Rebecca Gerrard on 24/03/12

£5.00

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Best of luck to you bothxx

Donation by MONICA ROOT on 16/03/12

£5.00

+ £1.25 Gift Aid

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Good luck Ash! :) X

Donation by Anonymous on 15/03/12

£5.00

Donation summary

  • * Online donations£638.00
  • Offline donations£0.00
  • Text donations£1.00
  • Total raised£639.00
  • Gift Aid£114.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.