Your friends are fundraising. Don't miss out, opt in.

Fundraiser complete

This page is now closed, but you can still donate to the cause directly

Ashworth Runners

Sophie Rushton is raising money for Alex, The Leukodystrophy Charity

Participants: Soph, Em and Sue

Donations cannot currently be made to this page

Bupa Great Manchester Run 2011 · 15 May 2011 ·

Alex, The Leukodystrophy Charity (Alex TLC) was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.

Story

<p><span style="font-family: Tahoma; font-size: 13px;"> </span></p> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">Hello,</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">&nbsp;</span>&nbsp;</span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="color: #800080;"><span style="font-family: Arial; font-size: x-small;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">Thank you for visiting our Just Giving page.&nbsp; We are taking part in the Great Manchester Run on the 15th May 2011 to raise vital funds for the charity&nbsp;</span></span><span style="font-family: Arial; font-size: x-small;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">ALD.org,&nbsp; ALD&nbsp;(Adrenoleukodystrophy) is a rare, genetic terminal brain disorder mainly affecting apprently healthy young males.&nbsp; It doesn't just affect young boys as there are other manifestations of the disorder which can affect adult women and men too, affecting the nerves and spinal cords.&nbsp; If you have ever seen the film Lorenzo Oil (1992), this is the rare&nbsp;disease that the film documents.&nbsp;</span></span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;">&nbsp;</span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">ALD.org is not government funded because less than 1% off the UK population are effected by it.&nbsp; ALD.org is purely funded by donations only, so raising funds for this charity is crucial to the survival of the sufferers of this disease.&nbsp; I have met families who have children with this disease and their courage and strength as well as their drive to raise awareness and funds was truly inspirational.&nbsp;</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;">&nbsp;</span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">Donating will help ALD to:</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;">&nbsp;</span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">- Advise and support other families and individuals</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">- Give grants for equipment, therapy and care costs</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">- Financially support those going through bone marrow transplants and bereavement</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">- Campaign for new born screening</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">- To raise both public and medical awareness for ALD</span></span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;">&nbsp;</span></strong></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">Thank you</span></span></strong></div> <div style="text-indent: 0px !important;"><span style="color: #800080;"><strong>Soph, Em and Sue</strong></span></div> <div style="text-indent: 0px !important;"><strong><span style="font-family: Arial; font-size: x-small; color: #800080;"><span class="ecx381110614-05042011" style="text-indent: 0px !important;">xxxx</span></span></strong></div> <p>&nbsp;</p> <p>&nbsp;</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>

Donation summary

Total
£325.00
+ £78.81 Gift Aid
Online
£325.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees