Story
The disease attacks the body’s vital organs, especially the lungs and digestive system, by literally clogging them with thick sticky mucus that makes it difficult to breathe and digest food. Average life expectancy is 31. At present there is no cure and 3 young lives are lost each week in the UK to the effects of CF.
Benji is 4 years old and suffers from this life limiting disease
My day starts with 6 teaspoons of the dreaded foul tasting medicine, followed by physiotherapy, then more medicine and then I can have breakfast. This happens again in the evening and I have medicine throughout the day whenever I eat or drink. I often get coughs and colds and then I need more medicine, injections and physio and have to stay in hospital. I am really well at the moment and I love swimming, running, jumping and bouncing which I do all the time to keep my lungs healthy. I am very lucky as most people with CF are not so well. I am the healthiest I can ever be today and over time my health will start to deteriorate but you could help change that!
Help to change the world today by supporting CF gene therapy research
On the 13th April 2008 my Mummy (Wendy) and her friends Jane & Phil will be running the Flora London Marathon to raise £15,000 for the CF trust. This money will help fund the gene therapy research for CF. Scientists are close to finding an effective gene therapy which will halt the lung damage that kills so many young people in the country. For Benji and all who have CF it will be the gift of life and can’t come soon enough.
Thank you for visiting my fundraising page. Please be generous and sponsor me online - it could make a huge difference for all of us who face the daily challenges of living with CF.Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Cystic Fibrosis Trust will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
So please sponsor me now!
Many thanks for your support.
Please see visit www.benjof.com for regular updates