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Reverse Rett syndrome

Branka Novakovic is raising money for Reverse Rett
“Get Dejana free of severe symptoms ”

on 4 May 2012

Donations cannot currently be made to this page
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

<p><strong>Dejana is 15 years old and has Rett Syndrome. This is a very severe neurological disorder that prevents normal development in girls. They can never use their hands purpose full. Most of them do not walk. &nbsp;<br><br>Dejana can walk but she can not play, run, swim, talk or ride a bicycle. She has daily seizures, spasms and dystonia in her muscles. She watches how other children play but she can not join them. Her body does not follow her thoughts. She is locked in. She stops breathing few times a day and she turns blue in her face for a number of minutes. It is a very common problem in Rett syndrome besides epilepsy......<br><br><span style="color: #800080;">But research showed us that all these symptoms can be reversed in a mice model of Rett syndrome. They are ready to test some promising therapies in girls too. But these projects are expensive. Fortunately there are some charities that will finance research. I opened this page to help them raise money because it can change our lifes and the future for Dejana.</span><br><br><span style="color: #800080;">Please help us to find the best therapy for all our girls. </span></strong></p> <p>Thanks for taking the time to visit my JustGiving page.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>

Donation summary

Total
£30.00
+ £2.50 Gift Aid
Online
£30.00
Offline
£0.00

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