Reverse Rett syndrome
I'm exercising daily for Rett Syndrome Research Trust UK because they support the research that can change my life
£30.00 raised of £10,000.00 target
£30.00 raised so far
How to make a donation
Donate online at - www.justgiving.com/Branka-Novakovic
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By text message to donate £10 Text LYMU47 £10
Dejana is 15 years old and has Rett Syndrome. This is a very severe neurological disorder that prevents normal development in girls. They can never use their hands purpose full. Most of them do not walk.
Dejana can walk but she can not play, run, swim, talk or ride a bicycle. She has daily seizures, spasms and dystonia in her muscles. She watches how other children play but she can not join them. Her body does not follow her thoughts. She is locked in. She stops breathing few times a day and she turns blue in her face for a number of minutes. It is a very common problem in Rett syndrome besides epilepsy......
But research showed us that all these symptoms can be reversed in a mice model of Rett syndrome. They are ready to test some promising therapies in girls too. But these projects are expensive. Fortunately there are some charities that will finance research. I opened this page to help them raise money because it can change our lifes and the future for Dejana.
Please help us to find the best therapy for all our girls.
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Charity Registration No. 1136809
Rett Syndrome Research Trust UK has one goal: to accelerate treatments and a cure for Rett Syndrome and related MECP2 Disorders. Rett Syndrome has already been reversed in the lab. With your help, we can build a brighter future for our children.
keep up the good work!
Donation by jouke Hoogeveen on 29/10/12
Good luck Branka. Hope you get lots of donations.
Donation by Anna Chan on 03/06/12
+ £2.50 Gift Aid
- * Online donations£30.00
- Offline donations£0.00
- Text donations£0.00
- Total raised£30.00
- Gift Aid£2.50
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