My story

Thanks for taking the time to visit my JustGiving page.

I am very honoured to have been given one of the few places awarded to the Cornelia de Lange Syndrome Foundation in the 2012 London Marathon to run on their behalf to raise money for this special cause.

17 years ago my cousin Jade was born with Cornelia De Lange Syndrome; one of only a few diagnosed in South Africa at the time. My aunt and uncle struggled through many tough and challenging times from diagnosis to nearly losing her several times.  They are devoted parents and have fought to gain knowledge of this rare sydrome.  Only through the UK foundation links with South Africa were they able to understand more about Jade's condition and how to handle her special needs.  

CdLS is a rare genetic disorder affecting 1 in 100,000.  Those affected have multiple disabilities.  All have learning and behavioural difficulties, many have physical disabilities (problems with growth, cardiac, neurological and limb defects).  At the moment there is still no knowledge of what causes the syndrome.  The foundations mission is to work as an international organisation dedicated to ensuring early and accurate diagnosis of CdLS.  They promote research and enable families, friends and professionals to make decisions and plan for the present and future of those affected.  

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving.  Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate.  

I really appreciate your support and thank you for your donation which I know will enable others like Jade and their families to get the help and support that was so beneficial to my family as well as helping the CdLS foundation with further research by working with leading universities.    

Many thanks

Bridget

My charity

CdLS Foundation UK

CdLS Foundation UK

Charity Registration No. 1054033

The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Donations 31

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Well done, hope you enjoyed it. Best wishes

Donation by Matthew Hutchin on 25/04/12

£10.00

+ £2.50 Gift Aid

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don't pull a muscle thinking of you Luff & Stuff The Aldridge Crew of 6 x x x x

Donation by Ian Aldridge on 21/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck Bridget!

Donation by Karen Holt on 21/04/12

£50.00

+ £12.50 Gift Aid

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Dear Bridge Wishing you all the best for Sunday. From all your colleagues at CHP

Donation by The Cornhill Partnership on 20/04/12

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Best of Luck Bridge.

Donation by Paul Bulteel on 19/04/12

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We Love and support you every step of the way. Good Luck! know you can do this. All our love mum,dad xx

Donation by Delia Baker on 18/04/12

£35.00

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Good luck Bridget - enjoy every moment

Donation by Patrick Mooney on 18/04/12

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You'll make it!!! Best wishes from Laurent, Vodka and Brandy...

Donation by Claes Zackrisson on 15/04/12

£25.00

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Good luck Bridge. Will be thinking of you. xxx

Donation by Lisa Murray on 12/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Bridge. Hope it all goes well. Best wishes x

Donation by Tom Bradley on 11/04/12

£25.00

+ £6.25 Gift Aid

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Good Luck Bridget, I know you can do it! :) This is such a great cause it's amazing your doing this! x

Donation by Abbie Chappell on 02/04/12

£10.00

+ £2.50 Gift Aid

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Very proud of you!! Good luck Bridget!

Donation by Asli Sunac on 02/04/12

£15.00

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Good luck Bridget! Best wishes Rob W

Donation by Robert Walker on 01/04/12

£25.00

+ £6.25 Gift Aid

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Good luck Bridget!

Donation by Monika Lassova on 27/03/12

£20.00

+ £5.00 Gift Aid

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Well done Bridge - will be thinking of you!

Donation by Rob Allin on 12/03/12

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Well done Bridget - best of luck from all at AM

Donation by Archer Mathieson on 09/03/12

£50.00

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Keep it on, Bridge, you can do it! Good luck!

Donation by Zheng Du on 07/03/12

£10.00

+ £2.50 Gift Aid

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You can do it Bridge ! Make the charity with my name proud. Go, go, go ...

Donation by Cornelia Chalmers on 06/03/12

£50.00

+ £12.50 Gift Aid

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Run Bridget Run... Best of Luck - you will do a great job! You go girl!

Donation by Lynne-Anne West on 06/03/12

£10.00

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Best of luck Bridget! xxx

Donation by Emma Webb on 06/03/12

£10.00

+ £2.50 Gift Aid

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Well done Bridget, I hope you raise lots of money. Pamela.

Donation by Pamela Thompson on 05/03/12

£10.00

+ £2.50 Gift Aid

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Bridget - great effort & a v worthy cause. All the best, Alastair

Donation by Alastair Lechler on 16/02/12

£10.00

+ £2.50 Gift Aid

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Bridget, I'm so impressed you're doing this! I wish you all the best in achieving your goals x

Donation by Astrid Brook on 07/02/12

£10.00

+ £2.50 Gift Aid

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Good luck Bridge!!!!!!

Donation by Amber Connelly on 06/02/12

£10.00

+ £2.50 Gift Aid

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Bridge, Good luck. I know you can do it. xxx

Donation by Carlie richings on 30/01/12

Donation summary

  • * Online donations£780.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£780.00
  • Gift Aid£117.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.