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I will be fundraising for SMA because my daughter Caoilte was born with a rare genetic muscle wasting condition called Spinal Muscular Atrophy (SMA).

At just 15 weeks old we were told that Caoilte had SMA Type 1, After hearing the facts about SMA my family, friends and myself were totally devastated.

Caoilte having SMA type 1 means she has the most aggressive form of SMA. 

SMA is a devastating, genetic disease. It is a leading genetic killer of infants and toddlers. There currently is no cure for SMA

I hope to raise funds and awareness for the SMA Trust, a charity dedicated to funding vital research into finding a cure for SMA.

The SMA Trust is the only UK charity dedicated solely to funding research into this debilitating condition.

Thank You for your support and generosity by donating this could help Caoilte and also anyone affected by SMA.

You can also donate via free text by texting SMAX99 £ plus your amount to 70070.

This is a charity that is very close to my heart and I hope one day we can help find a cure any donations big or small will make a difference.

Many thanks

Fiona and Robert

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