Your friends are fundraising. Don't miss out, opt in.

Fundraiser complete

This page is now closed, but you can still donate to the cause directly

Running for Little Amber CDKL5

Carol-Anne partridge is raising money for Reverse Rett

Participants: Linda Bickerton, Amie Axe

Donations cannot currently be made to this page

Adidas Women's 5k Challenge · 11 September 2011 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

<div class="description"> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">Thank you our visiting my fundraising page!<br /><br />Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.<br /><br />Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!</span></span></span></strong></p> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">My daughter Amber suffers from CDKL5, this condition, means Amber cannot walk or talk, cannot feed herself, suffers from multiple seizures a day, she also has limited vision.&nbsp; Amber is one of around 300 children worldwide that is currently diagnosed with this condition, with around 30-35 of those living in the UK.</span></span></span></strong></p> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">Linda, Amie&nbsp;and I are running/walking in the Adidas Women's 5km Challenge, in honour of these wonderful children who are suffering from this devasting condition, what inspiriations they are!&nbsp; I know Amber is!&nbsp;&nbsp; </span></span></span></strong></p> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">Thanks so much</span></span></span></strong></p> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">Carol-Anne Partridge, Linda Bickerton and Amie Axe</span></span></span></strong></p> <p><strong><span style="color: #ff00ff;"><span style="font-size: small;"><span style="font-family: Comic Sans MS;">XXXXX</span></span></span></strong></p> <p><span style="color: #ff00ff;"><em>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</em></span></p> </div> <p><span style="color: #ff00ff;"><em>So please dig deep and donate now.</em></span></p>

Donation summary

Total
£295.00
+ £73.75 Gift Aid
Online
£295.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees