Story
I am taking part in this event as Motor Neurone Disease is a condition that has affected me on a very personal level. My father is currently living with the condition which impacts him and those around him on a daily basis. He was diagnosed over twelve years ago and he has been fortunate that the progression has been slow. However, it has now reached the stage where he is unable to move his arms or legs and he has remained this way for over five years, slowly he is losing a little bit more as time moves on.
MNDA have been a great support and it is somewhere we have always been able to go to for any questions and support. He is able to use a computer thanks to the aids they have supplied him with which allows use through his head movement.
I feel this is still a little known disease and any awareness and fundraising will go towards helping in a tremendous way those currently living with/affected by the condition and research into a future cure as currently there is no cure.