Story

I am running Conwy Half Marathon on Sunday 21st November in North Wales. I started running this year and this will be my 3rd half marathon so far.

Lillana is my second cousin, she has rett syndrome. Rett syndrome is a complex neurological disorder. It mainly affects girls. Although signs of Rett syndrome may not be initially obvious, it's present at birth and becomes more evident during the second year. This often results in loss of skills including speech and movement.

Lili is now 4 yrs old and has very limited movement, she can sit for short periods but normally needs support, and she can reach for her favourite toys and enjoys chucking it when she is felling devilish. She can communicate through simple sounds and certainly laughs and giggles a lot when she is happy. Lili is unable to feed herself and since last year has been fed through a tube in her tummy. She needs constant 24 hour care.

The Retts association is the UK charity that supports people with Retts, their families and carers. Its also plays a vital role in funding the ongoing research into this condition. Recent break throughs in this research have started to lead to a greater understanding of what is the genetic cause and more importantly hopefully finding a cure or easing the severity.

Thanks for taking the time to visit my JustGiving page. Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.So please dig deep and donate now.

Raising money for

RETT UK

RETT UK

Charity Registration No. 1137820

Rett syndrome is a rare and devastating disability, genetic but largely not hereditary, it can affect any family. Those with Rett syndrome will require lifelong, 24/7 care. Rett UK offer professional advice and advocacy to anyone affected by Rett syndrome.

Donations 7

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Donated on behalf of Penny, Angela and Darren. Thankyou very much for sponsorship to everyone.

Donation by Cheryl Craven on 15/12/10

£20.00

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Good Luck, walk it if you have to..x

Donation by Julie Skinner on 08/11/10

£10.00

+ £2.82 Gift Aid

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Just go for it and enjoy the experience

Donation by susan scott on 28/10/10

£10.00

+ £2.82 Gift Aid

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Go for it gal. It will be worth it although its a long way!!

Donation by Alan Hall on 25/10/10

£20.00

+ £5.64 Gift Aid

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All the best for the run. I empathise with the pain!!

Donation by Andy Waine on 20/10/10

£10.00

+ £2.82 Gift Aid

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Run Forest Run.

Donation by Ann Holmes on 12/10/10

£10.00

+ £2.82 Gift Aid

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Donation by Joanne Thomas on 12/10/10

£5.00

+ £1.41 Gift Aid

Donation summary

  • * Online donations£85.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£85.00
  • Gift Aid£18.33

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