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Jumping For Battens 18/03/2012

Chris Hayman is raising money for Batten Disease Family Association

Participants: Bev Roberts

Donations cannot currently be made to this page

Jumping for Battens Disease (Amelia Rose) · 18 March 2012

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

<p>Thanks for taking the time to visit my JustGiving page.</p> <p>This Skydive jump is to raise money and awareness for Battens Disease.</p> <p>This is a cruel<span style="color: #808080;"><span style="color: #000000;"><em> devastating and fatal childrens illness. </em></span></span></p> <p><span style="color: #808080;"><span style="color: #000000;"><em>A neurological terminal illness that slowly takes every skill, sight, walk, speech,swallow until uncontrollable sei</em></span><span class="text_exposed_show"><span style="color: #000000;"><em>zures finally make the brain and body take no more . </em></span></span></span></p> <p><span style="color: #808080;"><span class="text_exposed_show"><span style="color: #000000;"><em>Sadly my daughter Amelia Rose has been clinically diagnosed with this disease.</em></span></span></span></p> <p>Can you please help me to raise as much as possible. It doesn't matter how small your donation because it will all be greatly received and very much appreciated. I thank you for visiting this page and hope it has inspired you to make a donation.</p> <p>Thank you so much.</p> <p>PLEASE NOTE: Chris Hayman is no longer doing this SkyDive but Bev Roberts is, so please continue to give generously.</p> <p>Remember: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never share them with anyone or send you unwanted emails. Once you donate, they'll send your money directly to the charity. They'll make sure Gift Aid (an additional 28%) is reclaimed on every eligible donation by a UK taxpayer, too. That means more money goes to the charity, faster, with JustGiving.</p>

Donation summary

Total
£2,374.50
+ £137.00 Gift Aid
Online
£2,374.50
Offline
£0.00

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