Thanks for taking the time to visit my JustGiving page.

I have decided to put myself through the joy of running the Brighton marathon to raise awareness and as much money as I can for DEBRA.

26.2 miles of pure hell, can you imagine?

DEBRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB).

Epidermolysis Bullosa (EB) is a group of genetic disorders that result in fragility of the skin and, in some cases, other internal membranes and organs. Blisters, open wounds and sores form as a result of the slightest touch, rub or trauma.

Certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there more than 5,000 people with EB in the UK, and 500,000 worldwide.

This is a charity that is very close to my heart. It is a brutal disease, currently with no cure. We need to raise funds for more research and treatment.

 

So please dig deep and donate now.