Raised: 155%
Target: £1,000.00
Raised so far: £1,545.00
Donate now

My story

 

 

 

 

Batten Disease or the neuronal ceroid lipofuscinoses (NCLs) is a group of neurodegenerative genetic diseases occurring in childhood.  The BDFA is the only UK Patient Organisation supporting families and professionals and facilitating research.

 

Friends of ours have a little girl who was diagnosed with Batten Disease last year. They face a difficult time ahead, and sadly, Batten Disease at this time is incurable. As it is such a rare condition, few people are aware of it, and the charity is not inundated with fundraisers. We wanted to show our support for our friend's by raising money for the charity through completing The Great Scottish Run. Our friend's would be delighted if other families could be given some hope through continued research for a cure, and support through the other fantastic work which the BDFA does. Please dig deep with your sponsors, we'll have to in order to get round the race!

 

 

 

 

 

 

 

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Your only getting sponsored as its my good deed for the day, and your time wasnt terrible for a fat burd! Donation by Mark Bell 09/09/09  

£5.00 + £1.41 Gift Aid

Well done Chris & Jen! Jen, you did amazing to get to the finish depsite being in so much pain. Take care x Donation by Linda Phillips 08/09/09  

£10.00 + £2.82 Gift Aid

Well done chaps, hope you're not too blistered! Donation by Gordon Muir 07/09/09  

£30.00 + £8.46 Gift Aid

Well Done to you both from Allan & Lyndsay. Donation by Lyndsay Campbell 07/09/09  

£20.00 + £5.64 Gift Aid

May the wind be with you! Best of the luck for the run! Donation by Ali, Jackie and the Boys! 06/09/09  

£50.00 + £14.10 Gift Aid

Donation by lachlan maclean 06/09/09  

£20.00 + £5.64 Gift Aid

good luck agroes! Donation by Mike Anderson 04/09/09  

£20.00 + £5.64 Gift Aid

Just don't wear your wedges Jen and you'll be fine, you too Chris!!! :-) Donation by Janette Peat 04/09/09  

£10.00 + £2.82 Gift Aid

Good Luck Chris from Rich / Jean @ MEC Donation by Richard & Jean @ MEC 04/09/09  

£50.00

Good Luck ! Donation by Karen Dobie 04/09/09  

£20.00 + £5.64 Gift Aid

Good Luck Donation by Janice McIntosh 04/09/09  

£20.00 + £5.64 Gift Aid

Chris and Jenny, Best of luck. We hope that the miles pounded on the Killearn to Balfron circuit pay off! Donation by Kenny and Jen Barclay 04/09/09  

£20.00 + £5.64 Gift Aid

Good Luck Guys! Donation by Barbara Annis 04/09/09  

£15.00 + £4.23 Gift Aid

Good Luck Chris & Jen!! Donation by Victoria Jackson 04/09/09  

£20.00 + £5.64 Gift Aid

A long way for a big man with a bad back...Hope you don't have to carry him Jen!! Best of luck to the two of you....Paul Donation by Paul Murray 04/09/09  

£30.00 + £8.46 Gift Aid

Good luck to you both. I am doing the 10k at 9:30! Donation by Chris Gordon 02/09/09  

£25.00 + £7.05 Gift Aid

All the best to both of you this Sunday. Glad I'm only doing the 10k version this time! See you at the finish line. Donation by Steve Batchelor 01/09/09  

£15.00 + £4.23 Gift Aid

All the best!! Donation by Rick Anderson 31/08/09  

£10.00 + £2.82 Gift Aid

This sounds like a good cause so best of luck. Donation by Kenneth Anderson 29/08/09  

£20.00 + £5.64 Gift Aid

Good luck to both of you. Donation by Stuart & Claire Smith 26/08/09  

£40.00 + £11.28 Gift Aid

Jen and Chris, wishing you both loads of luck with your run! catch up soon love keri and paul xxx Donation by keri kelly 25/08/09  

£25.00 + £7.05 Gift Aid

Good to hear you're back into the running Chris ma man! Donation by Steve Anderson 24/08/09  

£20.00 + £5.64 Gift Aid

Donation by Edward Sansom 21/08/09  

£100.00 + £28.21 Gift Aid

Jen try not to make chris look too bad! Good luck to you both Donation by gemma 21/08/09  

£50.00 + £14.10 Gift Aid

Great cause. Chris - I hope the legendary bandana is making a comeback ? Donation by James Devlin 21/08/09  

£20.00 + £5.64 Gift Aid

Good luck! I'm only sorry I won't be able to see this with my own eyes!! gayle Donation by Gayle Templeton 21/08/09  

£25.00 + £7.05 Gift Aid

Good Luck to you and Jen with the Marathon. Donation by Ian Greig 20/08/09  

£25.00 + £7.05 Gift Aid

well done guys. Hey Jen, if you run as well as you talk, Chris will never catch you! x Donation by Gavin and Pauline 20/08/09  

£50.00 + £14.10 Gift Aid

Good luck with it. Try and keep up with the missus for once Chris! Donation by David & Sara Miller 20/08/09  

£40.00 + £11.28 Gift Aid

Chris and jen, we can't thank u enough for all your hard work! We really do appreciate it and wish you lots of luck!! xxx Donation by Si,Steph and Mia xxx 20/08/09  

£70.00
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* Total raised online: £1,235.00
  Offline donations: £310.00
  Gift Aid plus supplement: £297.56

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