Your friends are fundraising. Don't miss out, opt in.

Fundraiser complete

This page is now closed, but you can still donate to the cause directly

'Hope for John' - Skydive

Clair Lumsley is raising money for Hope for John
“Clair Lumsley's fundraising”

on 13 June 2011

Donations cannot currently be made to this page
Raising funds to aid research into Lafora Body Disease. Lafora disease is the severest form of human epilepsy. It afflicts previously healthy teenagers, initially with simple fits, then increasingly with prolonged fits that do not respond to medications.

Story

<p>In a moment of madness last week (!), I agreed to take part in a Jersey skydive to raise funds for the local 'Hope for John' charity.&nbsp; Im not the best flyer, let alone throwing myself out of a plane, so this will be a huge acheivement for me...</p> <p>Any donation, whether large or small,&nbsp;would be greatly appreciated :)&nbsp;</p> <p>Wish me luck!!&nbsp; eeek!</p> <p>Last year a Jersey teenager was diagnosed with Lafora Body Disease - an extremely rare condition. There are only 200 known cases in the world.<br /><br />Four years ago John (see picture) began having fits and last year was diagnosed with an extremely rare, and, as yet, incurable illness called Lafora Body Disease.<br /><br />Seizures become more frequent and mental faculties deteriorate.<br /><br />Five years ago researchers discovered the cause -a gene mutation - and are working on a cure. That costs money and as there's no government funding, John's mum Alice Morgan and helpers, are now devoted to raising as much cash as they can for the research through the Hope For John charity.<br /><br />The quest for a cure is going on in research centres in America and Canada and that's why Hope For John counts its donations in dollars - 60,000 so far, and rising.</p> <p>&nbsp;</p> <p>Thanks for taking the time to visit my JustGiving page.</p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>

Donation summary

Total
£886.00
Online
£696.00
Offline
£190.00

Charities pay a small fee for our service. Learn more about fees