Claire McKay
Claires mountain adventure
Fundraising for FND Hope UK
Story
I was diagnosed with FND in May 2018 after my legs gave way one day.
Hi everyone, just wanted to say that climbing a mountain is a huge deal for me, six months ago I thought I was going to end up in a wheelchair full time.. I’ve been diagnosed with FND, it is a chronic illness that affects the functioning of my nervous system. Basically like my software is a bit iffy lol. Some of the symptoms I get are:
*limb weakness, *numbness, *muscle spasms, *tremors, *cognitive problems, *nerve pain in the whole of right side of my body, *anxiety, *coordination problems, *migraines, *chronic joint pain, *chronic fatigue syndrome, *ibs, *sleep disturbances and more.
I have had to slow my life down and can’t over do things, but I am a determined person and want to push to stay on my feet.. literally!
I decided I wanted to climb Ben Lomond because it’s something I’ve always wanted to do, being diagnosed with a disability had grounded me and made me realise life is for living! And made me appreciate the little things in life and the beautiful Loch Lomond is one of them!
Functional Neurological Disorder (FND) is a common and disabling cause of neurological symptoms. People with FND can experience a wide variety of symptoms including:
weakness and abnormal patterns of movement (e.g. tremor, abnormal posturing of limbs)attacks of abnormal movement/change in awareness that resemble epileptic seizuressensory problemscognitive problemsvisual and speech symptomsFND Hope UK is a recognised charity #1173607. We promote awareness of FND through education and raising public understanding. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND.We are a force for change, uniting patients and their families with leading researchers and advocates to pioneer a new standard of care for FND.Our mission is to promote awareness, support affected individuals and advance research.
Hi everyone, just wanted to say that climbing a mountain is a huge deal for me, six months ago I thought I was going to end up in a wheelchair full time.. I’ve been diagnosed with FND, it is a chronic illness that affects the functioning of my nervous system. Basically like my software is a bit iffy lol. Some of the symptoms I get are:
*limb weakness, *numbness, *muscle spasms, *tremors, *cognitive problems, *nerve pain in the whole of right side of my body, *anxiety, *coordination problems, *migraines, *chronic joint pain, *chronic fatigue syndrome, *ibs, *sleep disturbances and more.
I have had to slow my life down and can’t over do things, but I am a determined person and want to push to stay on my feet.. literally!
I decided I wanted to climb Ben Lomond because it’s something I’ve always wanted to do, being diagnosed with a disability had grounded me and made me realise life is for living! And made me appreciate the little things in life and the beautiful Loch Lomond is one of them!
Functional Neurological Disorder (FND) is a common and disabling cause of neurological symptoms. People with FND can experience a wide variety of symptoms including:
weakness and abnormal patterns of movement (e.g. tremor, abnormal posturing of limbs)attacks of abnormal movement/change in awareness that resemble epileptic seizuressensory problemscognitive problemsvisual and speech symptomsFND Hope UK is a recognised charity #1173607. We promote awareness of FND through education and raising public understanding. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND.We are a force for change, uniting patients and their families with leading researchers and advocates to pioneer a new standard of care for FND.Our mission is to promote awareness, support affected individuals and advance research.