My story

Thanks for reading!

As some of you will know, my brother, Peter got a very rare 'one in a million' illness called 'Good Pastures Syndrone', or 'Anti-GBM Disease' in January last year. This caused his kidneys to stop functioning, he spent nearly 2 months in hospital after being sped to The Kidney Unit one evening, with the blues and twos going at 110 mph (Peter confirmed this with the ambulance driver!). He had emergency dialysis, numerous blood transfusions, visits by curious medical students 'studying' his rare case, many stories of interesting wardmates and since then he has been having dialysis 3 times a week in Brighton Hospital, having to get up at 5.30am to get there in time for the 4 hour morning sessions. AND an incredibly tricky 1 litre a day fluid restiction...thats including gravy, tea, ice cream, water in veggies, water, beer, whatever fluid he has to be accounted for and monitored. It is a continuous learning curve... and Peter has been hospitalised by a pint of Guiness on St Patricks Day ... and a packet of crisps a few weeks a go! TOO much POtassium in both. So without the Sussex Kidney Unit- peter would not be with us today - which is why I am attempting to get my legs around the Brighton Marathon to raise fulsds for it via the Friends of Brighton and Hove Hospitals.... Their Nurses, Doctors and Dialysis Machines are incredible! Thanks so much for your support xxx Clare xxxx

My updates 1

A MASSIVE THANK YOU for all the generous donations&messages of support&encouragement!WOW!Peter is next to me as I write this, on Dialysis in the Kidney Unit&we are both extremely happy about the funds raised as are the lovely staff here:-)FinishTime 4:33 photos soon to prove it!x

19/04/12 10:05

My charity

Friends Of Brighton & Hove Hospitals

Friends Of Brighton & Hove Hospitals

Charity Registration No. 209414

Friends of Brighton & Hove Hospitals fundraise to provide innovative new equipment as well as patient comforts. Your donation will support BSUH patients at the Royal Sussex County Hospital (including ICU and MASU), Sussex Eye Hospital and in health facilities across Brighton, Hove and Newhaven.

Donations 55

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Every little helps... All the best to your brother and yourself, hope to see you soon! lots of bisous xxx

Donation by Lori O on 11/07/12

£10.00

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Well done Clarey, you are just brilliant in every way. I really hope things get easier of your brother soon. Love you lots xxxx

Donation by Imogen Bancroft on 10/07/12

£10.00

+ £2.50 Gift Aid

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Better late than never... Sorry its taken so long to say but well done! What an amazing achievement!! Lots of love, Cara Xx

Donation by Cara on 31/05/12

£10.00

+ £2.50 Gift Aid

Donation by Sophie Dickin on 07/05/12

£10.00

+ £2.50 Gift Aid

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Well done Clare! Amazing feat for an amazing person. A great cause. Cat xx

Donation by Catherine Rowe on 01/05/12

£10.00

+ £2.50 Gift Aid

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Well Done Clare! Love to all the family Jo

Donation by Jo Brackenbury on 30/04/12

£20.00

+ £5.00 Gift Aid

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Well done Clare!! Such a great effort - really proud of you! Best wishes to you, your bro and family :-) Cesca xxx

Donation by Cesca Jenner on 28/04/12

£10.00

+ £2.50 Gift Aid

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Well done Clare from all of us at Slade. Best wishes to you, Peter and David and Marion. Hope things soon improve for Peter.

Donation by Robert Seale on 26/04/12

£20.00

+ £5.00 Gift Aid

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Well done Clare xxxxx Best Wishes and Good Luck to Peter Lots of Love

Donation by Gwen Harvey on 25/04/12

£10.00

+ £2.50 Gift Aid

Donation by Susan Maule-Oatway on 25/04/12

£20.00

+ £5.00 Gift Aid

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Well done Clare - you champion!!!! Sorry it's late xxxx

Donation by Zoe Hodges on 24/04/12

£15.00

+ £3.75 Gift Aid

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Sorry we are so late with the donation but glad to see the run went well and that you raised so much - well done. Nick & Carol

Donation by Nick Richards on 23/04/12

£20.00

+ £5.00 Gift Aid

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Well done indeed, Clare.

Donation by mordaunt cracroft on 23/04/12

£25.00

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Well done Clare

Donation by John and Caroline Greenwood on 21/04/12

£20.00

+ £5.00 Gift Aid

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You are awesome!! xx

Donation by Laura Bullas on 19/04/12

£10.00

+ £2.50 Gift Aid

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Fantastic effort Clare. Well done. Love to you, and Peter and all at C.L.

Donation by Amanda Hillier on 18/04/12

£26.00

+ £6.50 Gift Aid

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Well done Clare, what an amazing achievement! Love to Peter too, Theresa and Anthony

Donation by Theresa Waterhouse on 17/04/12

£50.00

+ £12.50 Gift Aid

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Well done Clare! Fantastic effort. Love to all.

Donation by Felicity Pethica on 17/04/12

£20.00

+ £5.00 Gift Aid

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Hope you survived yesterday and are recovering well today! Best wishes for your brother too. Jeannie (Cara's Mum) x

Donation by Jeannie Redlich on 16/04/12

£10.00

+ £2.50 Gift Aid

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Do hope all went well yesterday!

Donation by catherine, adam, ava and rex on 16/04/12

£30.00

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Sorry a little bit late. hope it went well xxx

Donation by Annabel Hodges on 16/04/12

£10.00

+ £2.50 Gift Aid

Donation by lindsay batcheller on 16/04/12

£20.00

+ £5.00 Gift Aid

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Well done plucky Took!

Donation by Pasha Parpia on 15/04/12

£20.00

+ £5.00 Gift Aid

Donation by Lucinda Rendall on 15/04/12

£20.00

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Wow! What a fantastic time - congratulations and hope you recover as quickly.

Donation by sarah crane on 15/04/12

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations$2,837.26
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$2,837.26
  • Gift Aid$618.57

* Charities pay a small fee for our service. Find out how much it is and what we do for it.