The little girl in the picture is Harriet, she has Rett symdrome - She was born showing no signs of any issues and came home from the hospital like any other healthy little girl, however today at nearly 8 years old Harriet is not playing dress up with her friends or riding a bike, instead she is left in a wheelchair, unable to talk, feed herself, or perform the most basic task a 7 year old would take for granted if this was not bad in itself, she has breathing difficulties, a feeding tube, and her perents have lost count of her seizures! - if she is lucky enough to make it into adulthood she will require 1 to 1 24 hour care... this CAN BE CHANGED...

Suprisingly Harriet has NO BRAIN DAMAGE,  she has a missing protien that would make her brain function normally, the condition has reversed in a lab and now research scientists are trying to transfer the reasearch into treatment for Harriet and the other girls with Rett syndrome. 

On Sunday 17th March, whatever the weather!! I am running the Reading half marathon with only one goal... to raise as much money as possible, dig deep so I can help make Harriet's teenage years full of fun and laughter!!