My story

Hi my name is Darren Crick. I am 27 years old, At the age of 18 months old I was diagnosed with Dancing Eye Syndrome (DES) also known as Opsoclonus Myoclonus (Irregular jerking movements of the body and shaking of the eyes.)

Following steroid treatment, visits too many doctors and the occasional visit to Great Ormond Street Hospital for a Year and a half it disappeared, I had a relapse at the age of 7, but since then I have gone through main stream school and now work as a carpenter.

However, this is very rare as other children who have been diagnosed with DES have had neuroblastomas (Cancerous tumours) and their learning and social skills are very much affected by this illness.

The Dancing eye support group was started in 1988 by a mother of a DES child. It relies solely on sponsored money, which goes towards very expensive research, and also a very important annual weekend away for parents and children of DES. This gives the parents a break and for them to share their individual stories and to let them know they are not on their own.

This support group has been there for me and my family through my illness as a child and I feel by running the London marathon and being sponsored I can be a part of helping and give back to the Dancing Eye Syndrome group to continue their research

So please, please help me by sponsoring me to help keep this group going which is close to my heart

Thank you for reading

Dancing Eye Support Group

 

 

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My charity

Dancing Eye Syndrome Support Trust

Dancing Eye Syndrome Support Trust

Charity Registration No. 1060181

The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.

Donations 102

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Well done mate x

Donation by Matthew Holland on 02/05/12

£10.00

+ £2.50 Gift Aid

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More cash donations Woooo Hooooo!! xxxx

Donation by Ellie Terry on 30/04/12

£15.00

+ £3.75 Gift Aid

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Woooo hooooo!!! Love from mum and me xxxx

Donation by Ellie Terry on 27/04/12

£2.00

+ £0.50 Gift Aid

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Well done Darren £20 love Sharon and Natasha inns and also £5 from The red lion Bletchingley

Donation by christine crick on 27/04/12

£25.00

+ £6.25 Gift Aid

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well done sweetie

Donation by Tony Chouls on 25/04/12

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More cash donations xxxx

Donation by Ellie Terry on 25/04/12

£33.00

+ £8.25 Gift Aid

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Cash donations from friends and family. Well done my little lovely. You did an amazing job. Love you billions xxxx

Donation by Eleanor Terry on 24/04/12

£90.00

+ £22.50 Gift Aid

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Donating on behalf of some friends x

Donation by Tanya Filer on 22/04/12

£25.00

+ £6.25 Gift Aid

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Good luck Daz. See you soon. Si, roni & lu

Donation by Simon Cooper on 22/04/12

£20.00

+ £5.00 Gift Aid

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Hey matey good luck and hope it's a pain free run x

Donation by graham ilsley on 21/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Darren! Hope it all goes well, see you soon. Love Alan

Donation by Alan Davies on 21/04/12

£50.00

+ £12.50 Gift Aid

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When they fire the gun, start running! And don't stop until you get to the finish line! Easy. Good luck mate, love you x

Donation by Nikki Wicks on 21/04/12

£15.00

+ £3.75 Gift Aid

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Good luck Darren! Such a fab cause!! Best wishes, Rebecca & Gary Leck x

Donation by Gary Leck on 20/04/12

£20.00

+ £5.00 Gift Aid

Donation by Tristan Thorpe on 20/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Darren! A great cause - on behalf of my niece Livy Filer :)

Donation by Jacqui Wood on 20/04/12

£5.00

+ £1.25 Gift Aid

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Good luck Darren. Great cause. Very best wishes Rob & Lou x

Donation by Louise Donnachie on 20/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Darren, think its just fantastic what your doing. Love Janice & Marc xx

Donation by Janice Ilsley on 20/04/12

£10.00

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Hey Darren, so proud that you have come this far with your running. Good luck and go for it!!!! xxx

Donation by Anna Williams on 20/04/12

£10.00

+ £2.50 Gift Aid

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Good luck little fella. Told you I'd get round to donating. Remember to look for the tree huger on tower bridge

Donation by Stu on 19/04/12

£26.00

+ £6.50 Gift Aid

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On behalf of my lovely friends little girl Livy xx

Donation by Suzannah Butcher on 19/04/12

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Our nephew has dancing eyes and anything to help!

Donation by Diane Smith on 19/04/12

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You fool it hurts, I know! Well done Darren you are a champion. Siobhan and I will be watching on TV if you see a camera wave. All our LOVE. XX

Donation by Colin Creedy on 19/04/12

£50.00

+ £12.50 Gift Aid

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Not long to go to the big run ! good luck & thank you from Zoey Skelton (DES) & family x

Donation by trevor skelton on 19/04/12

£20.00

+ £5.00 Gift Aid

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good luck Darren love Terry and Dave x

Donation by Terry Tinney on 19/04/12

£10.00

+ £2.50 Gift Aid

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Just learned about all this from Roger and very pleased to be able to support you and DES. Best wishes and good luck on Sunday.

Donation by Roy Ullah on 19/04/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£2,002.00
  • Offline donations£23.00
  • Text donations£0.00
  • Total raised£2,025.00
  • Gift Aid£414.25

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